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Ethical Approaches in Co-Producing HIV/AIDS Testimonials

This action research project focuses on ethical practices in HIV/AIDS testimonial co-production through collaborative methods, professional training, and best ethical practices publication. It supports public visibility and the voice of those living with HIV/AIDS. The project involves recruiting, meeting, training, and evaluating participants before, during, and after testimonials. Ethical issues addressed include paying the storyteller, right to one’s own image, and freedom of the press among others. Visit www.testimonialcultures.ca for more information.

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Ethical Approaches in Co-Producing HIV/AIDS Testimonials

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  1. Results From An Action-Research Project on Ethical Approaches to Co-Producing HIV/AIDS Testimonials (c) 2014 Mensah et al. public education with social or community workers participation in research projects and reports interviews with media professionals

  2. Community-UniversityResearch • Collaborative Methods • Environmental scan • Professional training • Inventory of “Best Ethical Practices” • Publication of an information kit (Le Porte-Voix) • Ethical Issues • Paying the storyteller • The right to one’sown image • Freedom of the press • Etc. (c) 2014 Mensah et al.

  3. Supportingthe voice and public visibility of people living with HIV/AIDS BEFORE • Recruit • Meet • Motivations • Autorisations • Consent • Rehearsals • Training • Logistics DURING • Logistics • Attendance • Listening • Intervening • Setting limits • Coaching • Respect • … AFTER • Follow ups • Evaluate • Meet • Document • Refer • Mobilisation • Dissemination • … (c) 2014 Mensah et al.

  4. Thankyou ! www.testimonialcultures.ca (c) 2014 Mensah et al. Maria Nengeh Mensah | Professor, School of Social Work, UQAM René Légaré| Communications Coordinator, COCQ-SIDA Marie-Eve Gauvin | Project Coordinator Aurélie Hot | Community Research Coordinator, COCQ-SIDA

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