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From Chance to Choice: Exploring the Human Genome Project and Future of Genetic Technology

This discussion delves into the implications of the Human Genome Project, examining how advancements in genetic technology, including assisted reproductive technology (ART) and genetic selection, reshape our future. It raises critical questions about the ethics of genetic enhancement, the risks of discrimination, and the impact of these choices on humanity. With insights into ART statistics, cloning debates, and patient consent, we confront the safety of modern choices and the potential consequences for future generations. What path do we choose moving forward?

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From Chance to Choice: Exploring the Human Genome Project and Future of Genetic Technology

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Presentation Transcript

  1. From Chance to Choice The Human Genome Project St Austell 22 October 2002

  2. The Birthmarkby Nathaniel Hawthorne • Perfection? • Science - Fantasy or Reality? • Risky Business? • Consequences - gambling with our future or securing a better future?

  3. GATTACAColumbia Pictures ‘We now have discrimination down to a science’ ‘There is no gene for the human spirit’

  4. Assisted Reproductive Technology • Continuous development of new technologies • To try and improve ART • Expand availability of treatment

  5. ART - some facts • In the year 2000 there were about 572,800 ‘natural’ live births and 4,362 live births following ART: that is 0.76% • There are 68 clinics in the UK - over 95% of people pay for their treatment

  6. Is the choice safe? • Research and Development • Rarely established in other species • Often first try with human embryos • Few controlled randomised trials • Not sure if beneficial/long term effects

  7. Choosing your Child • Defining ‘disease’ and ‘disability’ • Pre-implantation genetic selection ‘diagnosis’ • Genetic ‘enhancement’ of embryos - why not? • patenting and commercialisation

  8. HFEA - Research Licence • Advances in infertility treatment • Knowledge about congenital disease • Knowledge about causes of miscarriage • Contraception • PGD • Knowledge about embryo development • Knowledge about serious disease • Developing treatment for serious disease

  9. The Cloning Issue • Does this present any greater unknown than the other ‘treatments’? • Convention on Human Rights and Biomedicine 1997 (UK not signatory) • Suggested ban on • Cloning (human reproductive ban) • Sex Selection (except X linked diseases) • Creating embryos for research

  10. Stem Cell Research • Patient consent for research - for any use, altruistic? • Using ‘Spare’ embryos - why not? • Creating embryos for research • Cloning embryos for research

  11. From Chance to Choice? Where do we want to go from here?

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