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Patient Navigation Center

Patient Navigation Center. Kathleen Carter, Associate Director Patient Navigation Center. Agenda. Patient Navigation Center data + program update Patient Navigation Center marketing update Patient Navigation Center stories Open Q & A. Patient Navigation Center Data.

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Patient Navigation Center

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  1. Patient Navigation Center Kathleen Carter, Associate Director Patient Navigation Center

  2. Agenda • Patient Navigation Center data + program update • Patient Navigation Center marketing update • Patient Navigation Center stories • Open Q & A

  3. Patient Navigation Center Data • To date, the Patient Navigation Center has served 8,516 patients through 19,350 interactions since opening in February 2016. • We are averaging more than 195% of last year’s monthly totals for both overall patients served as well as new patients served.

  4. How to measure impact? Number treating over time? Cumulative “Treatment Score” Average Treatment Score “Treatment Score”* 0 - not treating 1 - CAT 2 - topicals 3 - phototherapy 4 - oral systemic 5 - biologic Days post initial contact N = 519 total, N = 5 at more than 1 year *Invented by Mike. Don’t quote me on this.

  5. How to measure impact? PNC vs. Annual Survey – Number Treating? Percent of moderate-severe patients treating with Humira N = 294 N = 362

  6. How to measure impact? DEFINE NAVIGATION CENTER OBJECTIVES 1. Call center or case management service? 2. Domestic or international? 3. Educational resource or treatment funnel? • 4. Quantity or quality? • Quantity always matters but we need to accept limitations: • Patient burden • Response bias • Method of contact • 5. Why collect data? • Satisfy corporate sponsors (what if sponsors weren’t corporate?) • Support advocacy efforts around access to care • Improve quality of PNC services • Assess health outcomes of our population • Research

  7. How to measure impact? Proposed data collection system • 1. Collect simple core data from “everyone”: • Sponsor obligations • PNC process improvement • Advocacy support • 2. Offer opt-in for annual surveying • Offer incentive? • Consent • Compare head to head with annual survey 3. Capture additional information in the form of navigator notes • Annual survey • PNC opt-ins (case) vs. annual survey panel (control)

  8. Patient Navigation Center Advisory Board Meetings • May 2017 • Review of 2017 Navigation Center business plan & marketing plan • October 2017 • Review of health care provider market research project, outreach/marketing strategies, longitudinal data collection

  9. Geopointe • Mapping application for every data point within our database • Health care providers, patients • Native connection to database

  10. Form Assembly • Integrated with database, embedded within NPF website • Conditional question presentation provides for better quality data collection and better user experience

  11. Marketing campaigns Fall/Winter 2017 • Chronic Pain Resources • World Psoriasis Day • Weekend of Action • Open Enrollment • Insurance Quick Guide • Out-of-pocket cost webinar series • Winter Skin Guide • Info kits with Seal of Recognition products

  12. Finding success in reaching new patients moving forward • Continue to highlight unique services of the Navigation Center and promote new resources, focusing on: • Learning from most successful 2017 campaigns • Identify strategies to introduce new constituents to the Nav Center at earliest opportunity • Onboarding email series • New member Navigator matching

  13. Stories from the Navigation Center • A.S. • Severe genital psoriasis, previously treated with topicals which were not effective • Curious about biologic and systemic treatment options, but didn’t think his basic high deductible plan would cover them • In working with his Navigator, we were able to: • Help him locate a provider in his network • Understand his coverage options and get him enrolled in a PAP • Now he is on a biologic treatment and finally feeling optimistic about getting clear.

  14. Stories from the Patient Navigation Center • M.D. • Mother of son, age 20 with severe PsO • Uninsured, very limited means • Not currently seeing a health care provider and not knowing where to turn to get specialized care • In working with her Navigator, we were able to: • Get her son enrolled in a program that offers free primary + specialty care for one year • Connected him with others affected by the disease • She and her son are deeply grateful for the support, hopeful about treatment possibilities

  15. Stories from the Navigation Center E.G. • Has PsO, PsA Has Medicare + Medicaid insurance coverage • Working with her rheumatologist but having a hard time getting on an effective treatment plan • Told that her insurance would not cover “more expensive drugs” and that she was “out of options” • In working with her Navigator, we were able to: • Help her understand her drug formulary, insurance coverage and treatment options • Equip her with a conversation with her health care provider • She is now on a biologic which is fully covered by her insurance

  16. Questions? Kathleen Carter kcarter@psoriasis.org 503-546-8361

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