Survivorship Self-management workstream:Carers of people living with and beyond cancerCharlotte Argyle Carers Support ManagerMacmillan Cancer Support
Carers in the UK • 6 million carers in the UK • 10% of adult population • 175 000 young carers
Carers of people with cancer • 38% of carers of people with cancer > 30 hours/week caring • 29% of carers of people with cancer: carer > 5 years. • More likely to experience anxiety and depression
Issues facing carers of people with cancer • Caring for someone with a fluctuating condition • Outpatient treatment • Long-term effects of illness and treatment
Emerging trends • Working carers • Caring from a distance
Impact of caring • Health • Financial • Employment • Social exclusion
What do carers of people with cancer need? • Information and advice • Practical support • Emotional support • A break! Respite
Self-management • Coping skills training • Adapting to a new normal life • Communicating with health and social care professionals • Lifestyle and behaviour coaching programme • Information with support that helps to tailor to life and context.