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Developing the BCS / DH Guidance Geraldine Mynors Project Director

Developing the BCS / DH Guidance Geraldine Mynors Project Director. HC2013 – Birmingham 16 April 2013. Topics. Context Project overview Launch of the final guidance – version 1. Topics. Context Project overview Launch of the final guidance – version 1.

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Developing the BCS / DH Guidance Geraldine Mynors Project Director

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  1. Developing the BCS / DH GuidanceGeraldine MynorsProject Director HC2013 – Birmingham 16 April 2013

  2. Topics • Context • Project overview • Launch of the final guidance – version 1

  3. Topics • Context • Project overview • Launch of the final guidance – version 1

  4. Record access is high on the policy agenda By March 2015: • Everyone who wants will have access to their GP records online • Everyone to be able to book GP appointments and order repeat prescriptions online • Everyone will be able to have secure electronic communication with their GP practice • E consultations more widely available • All health and care settings to work towards records integration.

  5. Enabling reviews complete • RCGP Patient Online Roadmap published March 2013 • Caldicott Review on the balance between sharing information and protecting individuals’ confidentiality – due for publication April 2013.

  6. Take up increasing… patchily Examples include: • Renal Patient View • E-Red Book • Patients Know Best pilots • Brains Trust pilot • Health Foundation ‘My Record’ Project www.pifonline.org.uk

  7. With uptake comes the potential for confusion and risk • Records being hacked and login information being ‘phished’ for • Desire to share, but share safely • Coercion from family members and others • Requests from external agencies for records access • Potential for inadvertent sharing

  8. Topics • Context • Project overview • Launch of the final guidance – version 1

  9. Overview of project • To produce comprehensive guidance on how to use shared and patient-controlled records safely and securely • Department of Health and BCS Health • Steering Committee and Project Board • Mynors Suppiah awarded contract through competitive selection process • Started May 2012; launched February 2013

  10. The Journey 2011 2013 2012 1st SteeringCommittee Power of Information LAUNCH! Print Ready Selection Deadline ProjectManager LayoutApproved Invitation to tender Idea BCS-DH Contract Copy Crystal Marked Funding approved by HM Treasury

  11. The Project Team Sarah Smith Geraldine Mynors Emily Newsom-Davis

  12. Aspirations for the guidance • Booklet and summary guide • Clear, straightforward, simple and directive • Give people skills and confidence • Focus on safe behaviour • Help people make informed choices • Relevant and personal • Pragmatic – given limitations of systems and rapidly evolving processes

  13. Steering Committee | Project Board Independents Patient Representative

  14. Methodology | Scoping

  15. Scope and audience • Electronic records only (not paper) • Primary, secondary and social care • England • Adults, including nominating others to access, but excluding vulnerable adults/children without capacity • For dissemination in both paper and web form.

  16. X Scope and audience Not about: • ‘Selling’ benefits of record access, although should be encouraging, reassuring, positive • ‘Sealed envelopes’ – covered by RCGP work • Complaints, or altering records • Secondary uses of data (e.g. research) • Making technology safe • Professional standards – covered in Care Record Guarantee

  17. Myths and Concerns uncovered in scoping focus groups Everyone will have to sign up to get full access to NHS services in future. Signing up for online access means the creation of an electronic health record. Signing up for online access makes your electronic health record inherently less secure. If I had access, my mum would immediately want to be able to read my record.

  18. Methodology | User Testing

  19. Topics • Context • Project overview • Launch of the final guidance – version 1

  20. http://www.nhs.uk/records

  21. Launch event – February 2013

  22. Thanks to our Steering Group • BCS Health (Chair of the Steering Group and Project Board) • CEO, IHRIM • CEO, Asthma UK • Health IT Consultant, BCS; Woodcote Consulting • Director, National Information Governance Board • Director Patient and Public Relations, DHID • Managing Director, CSE Healthcare; Intellect • BCS; Independent Consultant • NIGB; Mortimore Hill Associates (Social Care) • National Clinical Lead, GPs, DHID, RCGP • Nephrologist; Renal Patient View • ProgrammeManager, DHID • Information Manager, National Institute for Social Care and Health Research • Patient Representative • Senior Director Strategic Consulting in Europe, Cerner;Chair, BCS Health • Independent Consultant Wai Keong Wong* Isabel Chevis Neil Churchill Ewan Davis* Alan Doyle Toto Gronlund* Sue Hawkswell Mike Haynes Penny Hill Peter Short Keith Simpson Pauline Smith* Ben Toth Jean Waters Justin Whatling* Marlene Winfield* * Project Board Members

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