1 / 14

Navigating Autism Diagnosis: Guidance and Support for Parents

Facing an autism diagnosis can be overwhelming. David Williams shares his journey, exploring the emotions of relief, fear, and grief that often follow such news. He discusses the importance of understanding various diagnostic labels, including Asperger's Syndrome and Autism Spectrum Disorders. The article emphasizes the value of being proactive, seeking expert knowledge, and finding support groups and resources. With practical advice on navigating educational systems and social services, this guide aims to empower parents to advocate for their children and find the help they need.

cirocco
Télécharger la présentation

Navigating Autism Diagnosis: Guidance and Support for Parents

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Diagnosis – What Next?? David Williams, Cerebra

  2. Diagnosis – a good thing? • Relief • Fear • Grief • Blame So I’m not going mad then? What do I do now?

  3. What now? • Learning to be a parent all over again • Becoming the expert • Who do I go to for help and information? • Isolation • I thought the diagnosis would sort things out

  4. Diagnostic Labels • Asperger’s Syndrome • Atypical Autism • Autism • Childhood Autism • Childhood Disintegrative Disorder • High Functioning Autism • Hyperlexia • Kanner’s Autism • Mild Autism • Moderate Autism • Nonverbal Learning Disorder • Pathological Demand Avoidance Syndrome • PDD-NOS • Rett’s Syndrome • Severe Autism • Semantic-Pragmatic Disorder

  5. Understanding the Diagnosis ‘Well, Mr Williams, your son has Asperger’s Syndrome. I can recommend an excellent book by Tony Attwood..’ • Internet • Books • Support groups • Cerebra’s Regional Officers

  6. Education • IEPs • School Action • School Action Plus • Statementing • Which school? Barriers: ‘He’s really quiet at school’; ‘He’s an intelligent boy’; ‘He’s not severe enough to need help’; ‘He’s not actually disabled, is he?’

  7. Social Services • Mental health or learning difficulties? • Getting an assessment • Getting a social worker • Direct payments

  8. Social Security Benefits • Disability Living Allowance • Carer’s Allowance • Increases to other benefits Barriers: complexity of claim forms; stigma; negativity of claim form; lack of information; mis-information; lack of expert help

  9. Cerebra 10 Regional Officers – 1 in Wales, 9 in England • General information on condition and support after diagnosis • Completing benefit forms, tribunal representation • Help with all stages of SEN process • Assistance with getting help with social services

  10. 0800 32 81 159 Parent Help-Line

  11. Cerebra’s Parent Support

  12. Cerebra’s Parent Support Satellites Stress Counselling Sleep Service Portfolios Holiday House Sensory Toys Grants Wills & Trusts vouchers Speech Therapy Vouchers

  13. Any more questions?

  14. Thanks for coming! David Williams Parent Support Cerebra

More Related