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Project Hope: Tools for Preventing Psychiatric Crisis in I/DD Caregivers

Project Hope provides user-friendly webpages and resources for individuals with intellectual and developmental disabilities (I/DD) and their caregivers to prevent psychiatric crisis. The project focuses on health literacy and empowering caregivers to navigate the mental health system effectively.

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Project Hope: Tools for Preventing Psychiatric Crisis in I/DD Caregivers

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  1. 31st Annual Conference Mark Starford Molly Kennedy mark@brcenter.orgmolly@brcenter.org 1

  2. Mark Starford Molly Kennedy mark@brcenter.orgmolly@brcenter.org Board Resource Center The SCILS Group Head of School Inclusion Teacher Board Resource Center Advisor Chair, CA State Council Advocacy Consultant 2

  3. Project Hope Website • Tools for people with I/DD and their care givers who need resources to help prevent psychiatric crisis's. • Background • Significance • Health literacy • Project Components 3

  4. Background California Mental Health Services Act • Department of Mental Health • Department of Developmental Disabilities • Funding: • Regional centers develop and oversee innovative projects. • Focus on treatment for children, families and adult consumers with mental health diagnoses. 4

  5. % Background National Core Indicators Adult Consumer Survey 2011–12 Final Report (2013). Retrieved from www.nationalcoreindicators.org 5

  6. California DDS Consumers Dual diagnoses Approximately 13% diagnosed with dual diagnoses JoEllen Fletcher, Health Development Section I CA Department of Developmental Services 7th Annual Developmental Disabilities Public Policy Conference 2014 6

  7. Background Purpose: Strategies to avoid mental health emergencies and hospitalizations. Activities: Therapy for individuals with history of psychiatric hospitalizations and training for care providers. Project Focus User friendly webpages: Identifying Signs and Symptoms Using the Mental Health System 7

  8. Health literacy Ability to obtain, process, and understand basic health information to make “informed“ decisions. • Impacts ability to: • Navigate healthcare system • (completing forms, locating providers and services) • Share information with providers • Engage in self-care and disease management 2013 Sutter Health 8

  9. Health literacy Adult health literacy highest education 1/3 with a graduate degree have proficient skills to effectively manage chronic illness U.S. Department of Education, Institute of Education Sciences, 2003 National Assessment of Adult Literacy 9

  10. Health literacy Cycle of engagement Project Hope Empowerment and engagement among low-income Californians: Enhancing patient-centered care. 2012 Blue Shield of California Foundation Survey. September 2012 10

  11. Molly’s story • Observe learn signs and symptoms • Communicate reach out to trusted people • Document write down what is observed • Get support navigate mental health maze 11

  12. The stigma Don’t isolation. Reluctant to tell anyone Difficult to accept Don't equate yourself with your illness. I am not my illness Person first language Get support. Join local advocacy support groups Speak out against stigma. Offer to do presentations Express your opinions at events Advocate for better laws 12

  13. Introduction Video Introduction Watch video 13

  14. View video Watch video Observing 14

  15. View video Watch video 15

  16. Online forms 16

  17. Developing Project Hope • Focus groups • End users participate as advisors • people with disabilities • group home providers • family members • professionals • Test all the components 17

  18. What we learned eas Project Hope Focus Group and Community Survey 2013 18

  19. Abuse – a silent epidemic! • Educate and Empower • Learn about • What abuse is • How to report abuse • Where to get support • To be empowered! Kecia Weller Molly Kennedy 19

  20. Abuse happens 4 out of 10 people experience some type of abuse 20

  21. Abuse happens 90% Abusers know their victims - People who have regular contact with victim Sexually abused females are never reported - Lack of information about who to tell - When reported, 55% not believed 66% Abuse and Neglect of People with Development Disabilities:Dr. D Roof/Esser 21

  22. Abuse: advocates speak out YouTube 22

  23. JFK comment to Congress “We as a Nation have long neglected the mentally ill and the ‘intellectually disabled’. “This neglect must end, if our Nation is to live up to its own standards of compassion and dignity and achieve the maximum use of its manpower.” John F. Kennedy, address to Congress February 5, 1963 1963 23

  24. Contact Information info@projecthopeca.com Mark Starford mark@brcenter.org Molly Kennedy molly@brcenter.org http://projecthopeca.com 24

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