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Using Social Media to understand and respond to unmet patient need

Dr. Matthew Graham-Brown explores leveraging social media for understanding and responding to patient needs in nephrology. Join the discussion on analyzing social media feeds to enhance patient support and resource development. Learn about utilizing #Nephmadness, #NephJC, and more nephrology hashtags. Discover the potential of social media in interacting with patients and enriching the renal healthcare landscape.

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Using Social Media to understand and respond to unmet patient need

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  1. Using Social Media to understand and respond to unmet patient need DrMatthew Graham-Brown SpR Renal Medicine Editor and Founder RenalMed

  2. Bit of an introduction

  3. Additionally

  4. Networking and Communication

  5. Networking and Communication

  6. Nephrology related #’s - Conferences • #BTS16 • #ERAEDTA16 • #KidneyWeek • #UKKW2016

  7. Nephrology related #’s • #NephPearls • #TopNephrology • #Nephmadness • #UKRenalResearch • #NephJC

  8. How else can we use Social Media? • Interface with patients • Data rich resource • Possible to interrogate

  9. What we know

  10. FDA: Adverse event reporting from social media

  11. Hello Health - Brooklyn

  12. #MPNSM

  13. What can we do in Renal? • Well we can’t do it all at once!

  14. IgA Nephropathy • Most common GN in the western world • Most commonly affects young patients • Local expertise to help develop resources

  15. IgA Nephropathy

  16. Questions • Can we understand more about patient needs from analysis of social media feeds? • Can we meet this need with development of social media and web-based resources, delivered back to the patient through the same channels?

  17. Interrogating SM streams to understand needs of patients with renal disease?

  18. Social Media Feed Interrogation Search Criteria: ‘IgA Nephropathy’

  19. Lots of information!

  20. Geography

  21. Preliminary Review • Questions related to: • Diagnosis • Treatments available • How to prevent kidney failure • Identified informal peer support networks which shared personal experiences of • Coping with symptoms • Effects of steroids • Diet restrictions

  22. We can get all of this from patient surveys can’t we? Social Media Analysis • Real conversations/real questions • All freely available social media user posts can be analyzed • Agenda established by the patients Traditional survey • Patients know their opinion is being sought • Only capture engaged patients • Led by the agenda of the surveyor

  23. Not without important considerations

  24. Benefits highlighted as well

  25. Considerations • Privacy • Maintaining boundaries • Maintaining confidentiality • Respecting colleagues • Anonymity • Conflicts of Interest

  26. Further plans • Analyze data: Framework approach • Create resources in response to identified needs in partnership with patients • Create and coordinate a social media community for peer-peer patient support within a supportive framework • Analyze impact of resources and community support at meeting unmet need

  27. And of course

  28. #UkRenalResearch – Last 6 months

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