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Enhancing Healthcare Standards for Rare Diseases: 2006 Report Insights

The Rare Diseases Task Force has established a Working Group (WG1) focused on creating centers of reference to improve health care standards for rare diseases. The publication of the 2006 Report outlines key findings and recommendations. This report has been disseminated through various channels, including newsletters and the High Level Group on Health Services and Medical Care. Additionally, WG2 addresses access to treatment, evaluating the availability of drugs for patients with rare diseases. This initiative aims to enhance healthcare delivery and equitable access to treatments.

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Enhancing Healthcare Standards for Rare Diseases: 2006 Report Insights

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