Data Sources for Program Planning: Where to find them, what to do with them

1. Data Sources for Program Planning:Where to find them, what to do with them Nancy Warren, MPH nancy.warren@ucsf.edu 415-597-9287

2. Learning Objectives • State at least 4 publically available sources for HIV/AIDS epidemiologic and health care sector data that could be used for needs assessment purposes • Demonstrate how the use of epidemiologic and health care sector data can be used to plan programs

3. Context: Zoom out

4. Programs ISSUE(S) RESPONSE RESULTS Program rationale Program activities Program outcomes (needs assessment)(work plan) (evaluation) Data?Data?Data?

5. Evidence-based Using data as the basis for all planning decisions

6. Data types • Epidemiology (local and regional) • Clinical/Indicator data (local hospitals/clinics) • Behavioral (population surveys etc) • Benefit (ADAP, Medicaid) • Qualitative (key informant interviews, focus group) • Evaluation data (PIFs, ERs, PEFs)

7. Where to use this? • Individual program Needs Assessment • Participation in larger groups • Ryan White Prevention and Care Planning Council • SCSN (Statewide Coordinated Statement of Need)

8. Strategy • Analysis of existing datasets: identify needs and gaps • Qualitative data (Key informant interviews/focus groups): interpretation • Synthesis what needs to be targeted or improved?

9. What large datasets offer • Already collected data • Data used over time and tested– • Large numbers of people surveyed over years • Use of validated questions • “Already digested” data

10. What topics do they cover? • HIV-related: • HIV testing, exposure categories • sexual behavior / drug use • Demographics of patients and providers

11. What are some of these datasets? • BRFSS –Behavioral Risk Factor Surveillance System • YRBSS – Youth Risk Behavioral Surveillance System • ADAP – Benefit program (insurance like) • OSHPD (CA only) – Clinic and hospitalization

12. BRFSS • BRFSS • Phone survey of adults based on state level data • HIV testing & exposure risk • YRBSS • school based survey for youth (9th-12th grade) • sexual and drug use activity

13. ADAP • AIDS Drug Assistance Program

14. Indicator Level Data • Clinic level data collected on patients • Collection mandated but not currently distributed on a national level • Other options to HRSA data include HIVQUAL

15. CA only Sources • OSHPD: Office of State Health Planning & Dev • CHIS: California Health Information System

16. OSHPD • Clinic Level Data • HIV testing, STIs • Paps • Demographics of pts and providers • Hospital Level Data • HIV-AIDS hospitalizations

17. Exercise Data Mapping in small groups

18. You need to identify sources of data to write a program rationale for a training and capacity building program for clinicians . Using the handout and your own knowledge of your community (locality, county, state, region) identify 4 data sources you would use, 4 types of information you would hope to extract and how you would use this information for program planning. • Group 1: HIV Testing • Group 2: Women • Group 3: Young African American & Latino MSM • Group 4: Latino Providers

19. Further information • Local National Library of Medicine offers further training on datasets • Interpretive Data Sites include: • HIV Insite (UCSF) – workforce data • Kaiser Family Foundation – ADAP, syringe ex (statehealthfacts.org)

20. Thank you!