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The Prostate Cancer Symposium

The Prostate Cancer Symposium. An Educational Initiative for Patients and Healthcare Professionals October 6, 2009. Concept . Provide access to information and thought leaders to promote best standards of care dual-track format to maximize interaction

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The Prostate Cancer Symposium

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  1. The Prostate Cancer Symposium • An Educational Initiative for Patients and Healthcare Professionals • October 6, 2009

  2. Concept • Provide access to information and thought leaders to promote best standards of care • dual-track format to maximize interaction • Provide a faculty of world-class clinicians and researchers who set the standards of care

  3. Meeting Objectives • Patients: • understand role of biomarkers of diagnosis/progression • describe current treatments and emerging drug protocols • discuss the importance of effective patient/doctor dialogues • Professionals: • identify best standards of care • Define the impact of treatment on co-morbid conditions • Discuss the advances in therapeutic and drug protocols • Describe the appropriate use of novel therapies • Evaluate the information’s applicability to practice management

  4. Registered Attendance • Patients/spouses, Advocates • Targeted - 300; Actual - 120 (on-site): • 41% Advocates; 32% Patients; 6% Spouses/Partners; 21% Family/Caregivers • follow-on distribution - 164: • 29% Advocates; 37% Patients; 18% Spouses/Partners; 16% Family/Caregivers • Professionals • Doctors: Targeted - 100; Actual - 20 (on-site): • Medoncs - 6 • Radoncs - 2 • Primary Care - 12 • Nurses, Public Health Staff; Industry: • Targeted - 20; Actual - 17 (on-site) • follow-on distribution - 38: • Urologists -7; RadOncs - 3; MedOncs - 9; NP/PAs - 8; Medical Centers/Public health agencies - 11

  5. Patient Disease Stages • Primary Therapy: • Surgery - 42%; Radiation - 27%; Active Surveillance - 27%; Drug therapy - 4% • Disease progression from primary therapy: • 35% - yes; 64% - no; 1% - not sure • Current Therapy: • Not currently being treated - 82% • Hormonal therapy - 8% • Chemotherapy - 8% • Complementary/Alternative medicine - 2% • Previous or current Androgen Deprivation Therapy - 29%

  6. Faculty Comments • Went well for a first meeting • Ian Thompson • Captured a heterogeneous audience • Natasha Kyprianou • Develop a “Clinical Trials” program • Tia Higano; Dan Petrylak • Offer as a regional format • Brian Stone (multiple comments) • Truly excellent conference...great response from both sides of the aisle • Andrew Salner

  7. On-going Concerns • “Lack of educational efforts” • “Will screening be part of healthcare reform” • “...men of color MUST take care of themselves” • “the quality of the faculty was over the top” • “more time for advanced disease needed”

  8. Listening to the Audience:ARS initiative

  9. PSA Controversy • Patient/Professional divergences • Lack of clear-cut risk communications • Risk of advanced stage first diagnosis • Hidden impact on co-morbid conditions

  10. Clinical Trials Dichotomy • Dialogue Issues • Need for actionable patient information

  11. Understanding the Barriers • Need to deliver actionable professional info • Empower the patient to access trials

  12. Leveraging Awareness • Heighten drug knowledge for patients and professionals

  13. Promote Dialogue • Breaking down the barriers to communication

  14. The Prostate Net Patient Sitewww.theprostatenet.orgTraffic Stats • Traffic since inception September 1996: 5.6 million visits • average 7,528 visits/month; average page views/visit – 5.73 • Monthly Traffic 2009 vs. 2008: up 12.3% • Traffic source by category/domain: • US patient/family – 70.30% • US commercial organizations - 6.51 • US educational/healthcare/non-profit - 6.39 • US Government/military - 1.41 • Foreign domains - 15.39

  15. Enhancing Awareness

  16. Delivering Information • Committed Sites for 2010 • May 15 - Rutgers School of Public Administration: Prostate Cancer Educational Symposium • June 19 - Lombardi Cancer Center: Town Hall on Prostate Cancer • July 17 - Clark Atlanta University Clinical Cancer Research Center • August 4 - 7: Prostate Cancer Foundation of Australia: Prostate Cancer Symposium • August 28 - University of Florida Prostate Cancer Symposium • September 11 - Northwestern (Chicago) Prostate SPORE: Pca and Community Outreach • October - The Prostate Net: Prostate Cancer Symposium

  17. Feedback Mechanisms • TPN Website archive of Symposium presentations • Structured access to information and ARS • “Survey Monkey” to build information cadre • Ability to probe for actionable data • Continuing dissemination/response network

  18. Thank You! WWW.THEPROSTATENET.ORG www.youtube.com/user/vhsimons/ www.facebook.com/vhsimons http://twitter.com/vhsimons www.linkedin.com/in/virgilsimons/ 1.888.477.6763

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