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Autism Connections Europe: UK

Autism Connections Europe: UK . Service Provision - UK Dr John Lawson Oxford Brookes University. Service Provision – UK. Outline: Overview of UK service provision The “I Exist” report - 2008 The Adult Autism Act - 2010. Service Provision. Service Provision in UK:

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Autism Connections Europe: UK

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  1. Autism Connections Europe: UK Service Provision - UK Dr John Lawson Oxford Brookes University

  2. Service Provision – UK Outline: Overview of UK service provision The “I Exist” report - 2008 The Adult Autism Act - 2010

  3. Service Provision Service Provision in UK: Relative to many countries both diagnostic and support services generally good Highly variable throughout UK – historically controlled by regional NHS funding groups e.g. South Eastern England has much better diagnostic service provision than the North-West

  4. Service Provision Service Provision in UK: 3) Situation with specialist schools varies hugely – a) National Autistic Society – Runs 6 schools / 500 children (4 in Southern England) with a clear policy on teaching etc.. b) Many other ‘independents’ with varying approaches e.g. Treehouse (N London) – very big on ABA, Garden School (Lonsdale) – more varied approach

  5. Service Provision The “I Exist” Report: 2008 NAS Report voicing concerns & needs of people on ASC 2) Contained survey data (from ASC individuals, families / carers, Local Authorities & Primary Care Trusts 3) Contained in-depth interviews

  6. Service Provision The “I Exist” Report: 2008 4) Responses a) 2,600 individuals b) 770 parents carers c) 53 LA (35%) d) 24 PCT (16%) 5) Key Findings?

  7. Service Provision The “I Exist” Report: 2008 – Key Findings Understanding & record keeping needs to be better a) 67% of LA and 77% of PCT - no records of how many ASC adults live in their area b) 65% of LA do not know how many adults with autism they actually support

  8. Service Provision The “I Exist” Report: 2008 – Key Findings 2) Significant barriers to social care & health services- a) Only 42% of ASC adults (who responded) had received an adult needs assessment from their LA b) 45% of LA surveyed do not have a process in place to address the needs of people with ASC who do not fulfil the criteria of the learning disability or mental health team

  9. Service Provision The “I Exist” Report: 2008 – Key Findings 3) Needs & local service provision a) 63% of adults who responded - not have enough support to meet their needs b) Of those, 70% - could live more independently with right support Discrepancy indicated between the types of services that people receive and what they want

  10. Service Provision The “I Exist” Report: 2008 – Key Findings 4) More training for social care staff- a) 63% of LA who completed the questionnaire - support workers are insufficiently trained in ASC b) 56% said that ongoing professional development training was also inadequate All of the above fundamental in achieving …….

  11. Service Provision The Autism Act – 2009/2010 1) Put a duty in legislation on the UK Government to produce a strategy by April 2010 - strategy development underpinned by legislation 2) Put a duty on Government to produce statutory guidance for health and social care bodies by December 2010 The Act covers services for adults with autism and young people at transition

  12. Service Provision Strategy for England - 2010 Five main areas of focus – Awareness and understanding Diagnosis Access to services and support Helping adults into work 5) Service development

  13. Service Provision Strategy for England - 2010 Awareness and understanding – ASC to be included in the core training curricula for doctors, nurses and other clinicians ASC training to be part of training for staff involved with a) community care assessments b) criminal justice system c) all disability employment advisors (DEAs)

  14. Service Provision Strategy for England - 2010 2) Diagnosis– Local appointment of a lead professional to develop a local diagnostic and assessment services for adults with ASC National Institute of Clinical Excellence (NICE) to develop model care pathways to form the foundation of local referral and care pathways Diagnosis will trigger a community care assessment Statutory guidance to set out the type of information that should be provided to adults with ASC and their parents/carers once they have been diagnosed

  15. Service Provision Strategy for England - 2010 3) Improving Access To Services– a) Dep.Healthto develop guidance for mental health and learning disability services on “reasonable adjustments” for adults with autism b) Local authorities to work with the third sector to support development of advocacy and buddying schemes c) Clarification of types of support that students with autism can pay for with Disabled Students Allowance

  16. Service Provision Strategy for England - 2010 4) Helping Adults Into Work– a) ASC training for all Disability Employment Advisors (DEAs) b) Many of the measures in Valuing Employment Now arenew actions and initiatives from Work, Recovery and Inclusion to be available to support adults with autism d) Work to increase employer awareness

  17. Service Provision Strategy for England - 2010 5) Service Development – a) Each local area to develop a local commissioning plan b) DH work with regional partners to develop regional delivery plans c) Local authorities to appoint a lead with responsibility for autism d) DH to develop “protocol” on recording and sharing information

  18. Service Provision Summary: Many advances over the last few years Many changes / improvements due to come on-line soon Questions remain as to whether recent UK Government changes may endanger this

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