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Sleep Disturbance in Multiple Sclerosis: Insights from the TiMS Questionnaire Survey

This study presents preliminary findings from a questionnaire survey aimed at understanding sleep disturbances in individuals with Multiple Sclerosis (MS). The research highlights the significant impact of sleep issues on the quality of life and associated morbidity risk among persons with MS. An interdisciplinary approach in management is emphasized, yet clarity on current routine practices is lacking. With a 70% response rate, the findings indicate a gap in the use of sleep assessment tools and highlight the need for further training among healthcare professionals.

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Sleep Disturbance in Multiple Sclerosis: Insights from the TiMS Questionnaire Survey

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  1. Sleep Disturbance in MS Preliminary findings of Questionnaire Survey TiMS meeting 2012

  2. TIMS Research Working Group:Jenny Freeman, Paula Gardiner, Susan Hourihan, Ewa Johansson-Charles, Kay McDowell, Alison Nock, Helen Rowlands. • To date: • Template from last research project • MDT focus of project • Call for ideas nationally • Topic selected: “Sleep Disturbance” • Literature search to focus research question

  3. Background • Sleep disturbance affects quality of life and is related to ↑ risk morbidity in pwMS • Management can require input from diferent mdt members • Recommended mg’t is incorporated within routine practice • BUT we don’t know what is routine practice by the mdt ....►SURVEY

  4. Timetable (since September !) • Sept 14th • Sept 28th • Oct19th • Nov 2nd • Oct / Nov • Nov 7th • Nov 13-15th • ...Dec 14th • Dec 15-20th • Dec 23rd • Meeting at ION – develop draft 1 (based on literature and feedback MS clinicians) • Pilot of Questionnaire V.1(n = 21) • Finalised amendments to draft 2 • Pilot Questionnaire V.2 (N = 5 • Ethics Approval sought and gained • Spreadsheet designed for input • Survey distributed & collected • Data inputted • Data analysed • Abstract submittted to RIMS

  5. Preliminary findings • Response rate =70% (180 / 256) • Context • Range of settings: • Mdt (73%) • MS (56%) or neurology specialist (28%) • Experienced cohort (43% MS focus > 10 years) • Interventions used (wide range) • Written advice 50% • Fatigue m’gt 16% • Relaxation 24% • Exercise 29% • Typically on an individual basis

  6. Preliminary findings • Is sleep mg’t considered part of role? • 84% said YES • Are you confident with your knowledge? • 10% said YES • Do you use a specific sleep assessment instrument? • 67% do not • 37% unaware that these assessment tools exist • Would you value further training? • 49% would

  7. Thoughts • Provides initial understanding what is happening in current UK practice • Suggests practice variable and specific knowledge may be limited • Verification required • Exploration in more depth required about How and Why?

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