Changing Services, Changing Support, Changing Lives

1. Changing Services, Changing Support, Changing Lives Sue Rickell Allies in Change Tuesday 28th September 2010 Allies in Change UK Ltd.

2. Equality Our Future - Our Right “By 2025, disabled people in Britain should have full opportunities and choices to improve their quality of life, and will be respected and included as equal members of society.” Improving Life Chances of Disabled People, Prime Minister’s Strategy Unit, January 2005) Allies in Change UK Ltd.

3. What does Equality for Disabled and Older People mean.. To you? To your work place? To Your Community? To Disabled/Older People? Allies in Change UK Ltd.

4. If you are still providing services in 2025… • Who will be buying your services? • What will they want and expect for their money? • Where will they receive their support? • How will they assess Quality and value for money? • Why should they buy services from you? Allies in Change UK Ltd.

5. I would hope an altogether different “class” of people! • Who know they are equal members of a society where attitudes, the environment and systems are the problem, not them! • Have individual identity whilst working together as a group • Have opportunities and support to do what’s right for them. (now, not for ever) • Have ordinary experiences and take risks Allies in Change UK Ltd.

6. A different “class” of peoplewho … • Are equal members of the community and are proud of who they are • Have Choices and Rights and are involved in the development and progression of an Equal and Inclusive lifestyle • Start and lead activity and actions which promote status, money, contribution, a full and Equal life. Allies in Change UK Ltd.

7. Staying in business - Providing Personalised Support What could/would prevent your organisation “Putting Disabled/Older People First”? • People with Attitudes, • Environments / Places / Premises • The way things work (or don’t) • The way things are organised (or aren’t) Allies in Change UK Ltd.

8. The life Chances Report Defined Disability as the … “Disadvantage experienced by an individual resulting from barriers to independent living, educational, employment or other opportunities that impact on people with impairments and/or ill health.” Improving Life Chances of Disabled People, Prime Minister’s Strategy Unit, January 2005 Allies in Change UK Ltd.

9. The Life Chances Reportemphasised that: “While disabled people may need support with daily living, this does not mean they have to be ‘dependent’; rather, “independence comes from having choice and being empowered regarding the assistance needed”. and disabled people should take the lead in identifying their own needs and how they should be met Allies in Change UK Ltd.

10. Then the Government… outlined a vision for a new system in which “adults are able to take greater control of their lives”, and accepted that Individual Budgets should be tried out a means of offering greater choice, empowerment and freedom. Independence, Well-being and Choice 2005 Allies in Change UK Ltd.

11. In 2006 - “Our health, Our care, Our say” said. . . There needed to be high-quality support to meet people’s aspirations for… independence and greater control over their lives, and to shift services into a more personalised way of doing things, to fit around people’s needs. Allies in Change UK Ltd.

12. At last agreement with Disabled People that ‘barriers to dignity and quality of life’ are the things which make it difficult to: • Exercise choice and control, • Enjoy health and emotional well-being, • Have personal dignity and respect, • Have quality of life, • Be free from discrimination, • Make a positive contribution, • Enjoy economic well-being. Department of Health (2006) Our health, our care, our say – a new direction for community services. London: Department of Health Allies in Change UK Ltd.

13. Change is on the way… Transforming Adult Social Care • This means giving Social Services and Healthcare a Make - Over • It means that if we are going to have Healthcare and Services which have a personal or individual approach then something has got to change This is called ‘Putting People First’ Allies in Change UK Ltd.

14. The vision – what the “Make-over” means…. • Services tailored to the needs and preferences of citizens… empowered to shape their own lives and the services they receive” • People are able to live their own lives as they wish, with high quality, safe services which promote their own individual requirements for independence, well-being and dignity. • The role of social workers will be focused on advocacy and brokerage, rather than assessment and gate keeping. Allies in Change UK Ltd.

15. What the “Make-over” means…. • Individuals designing their support or care to suit their specific needs. • Better use of Direct Payments. • Use of Individual Budgets giving people more choice and control. • All individuals who are eligible for Adult Social Care will have a personal budget • A clear, upfront allocation of funding to enable individuals to make informed choices about how best to meet their needs, including their broader health and well-being. Allies in Change UK Ltd.

16. Making Personalisation a reality for the 21st century • It will take time.. • Service providers will need to work in Partnership. • All participants in Health and Social Services will need to work together to bring about change in Attitudes and the Systems which are essential if they are to Put People First Allies in Change UK Ltd.

17. What Difference Will it Make? (Outcomes) • Better health and well-being for all • Better care for all • Better Value for all Allies in Change UK Ltd.

18. What should be the vision and purpose of Health and Social Care services? • Improving people’s health and emotional wellbeing whilst enabling them to live as independently as suits them. • Individuals managing their own lives, confident that they have access to the right information, and someone to help at the right time, should they need more support. • Focusing on prevention, support and enablement, rather than crisis management Allies in Change UK Ltd.

19. Better care and support by way of: • Enabling people to make choices and be in control of their care so that it makes a difference first time. • Shared decision making to encourage ownership. (your choice, your life) • Providing quality care that promotes dignity, and is safe, effective and available when and where people need it. Allies in Change UK Ltd.

20. This means that we ensure people, whatever their health condition or impairment: • Live independently • Stay healthy and recover quickly from illness • Have maximum control over their own life and, where appropriate the lives of their family members • Support the whole family so that children do not have to take on caring roles • Participate as active and equal citizens, both economically and socially • Enjoy the best possible quality of life, and maintain maximum dignity and respect. Allies in Change UK Ltd.

21. What might prevent you or your organisation ‘Putting People First’? • Doubt • Fear • Lack of experience • Lack of expectation • Love of power • Commitment to the system • Attitudes – “our people won’t manage” Allies in Change UK Ltd.

22. Barriers to Personalisation • The myth of “independence” • Misunderstanding of Equality • Contradictions – Residential Care, Supported Living, Inclusion, Choice and Control • Living and working in the “safety” of the past rather that the “opportunity” of the future Allies in Change UK Ltd.

23. 2010 – 2025 and all the years between! 15 years 25 year old will be 40 45 year old will be 60 65 year old will be 80 75 year old will be 90 How old will you be? What do you expect you will have achieved? What will YOU doing? Allies in Change UK Ltd.