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Kate Swaffer

Explore the challenges and realities of dementia care from an insider's perspective. Learn how to provide individualized support and value those living with dementia, embracing their identity and assets. Discover the emotional struggles, stigma, and journey towards acceptance in dementia care.

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Kate Swaffer

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  1. Kate Swaffer

  2. 27th International Alzheimer’s Disease International Science Fact or Fiction 7 – 10th March 2012 London United Kingdom

  3. Person Centred Care:An Insider’s View

  4. Services targeted to the masses, rather than the individual...

  5. Person Centred Care • Define us by our assets • Speak to us, not about us • Work with us, not for us • Don’t diminish our symptoms • Value us • Individualise our support

  6. We are mothers, fathers, lovers, daughters, wivesor husbands, employees or employers, grandmothers, aunties, bloggers...

  7. Issues to be faced • Who will we become • A daily struggle between emotion and tasks • Further decline • Shame isolation and stigma • Grief and loss • Fear of loss of privacy • Death

  8. Dementia represents the end of dreaming, a long and unforgiving one way odyssey into obscurity, clouded in a thick and unforgiving fog.

  9. The Adelaide Cosy Club

  10. Dementia care is caring for people who often do not know they need care, and don’t want to be in care; no wonder they may become angry and upset!

  11. Thank you

  12. ReferencesBarnett, AE, 2000, Including the person with dementia in designing and delivering care, Jessica Kingsley Publishers, London, UK.Brooker, D, 2007, Person-Centred Dementia Care: Making services better, Jessica Kingsley Publishers, London, UK.NOLAN M., DAVIES S., BROWN J., KEADY J. & NOLAN J., Beyond ‘person-centred’ care: a new vision for gerontological nursing, International Journal of Older People Nursing in association with Journal of Clinical Nursing 13, 3a, 45–53, 2004.O’Rourke, V, 2008, I Wish I Were a Leper, Lumino Press, Qld, Australia.O’Connor, D. & Purves, B., (Editors) 2009, Decision-making, Personhood and Dementia: Exploring the Interface, Jessica Kingsley Publishers, London, UK.

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