1 / 20

Young advocates – it is possible!

This captivating story chronicles the evolution of the EFCCA Youth Group (EYG) from its inception in 1998 in Erlangen to its current role as a vital platform for young individuals with Inflammatory Bowel Disease (IBD). Through dynamic meetings and innovative projects, the EYG fosters a sense of community, empowering youth aged 18-30 to share their experiences, voice their concerns, and develop initiatives such as the GAME and summer camps. By overcoming generational barriers and embracing digital communication, the EYG continues to thrive, paving the way for a new generation of leaders united in their mission.

kylynn-wall
Télécharger la présentation

Young advocates – it is possible!

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Young advocates – it is possible! • ‘The experience of the EFCCA Youth Group’

  2. This is... • the story of a journey • but, above all, a dream that became an amazing, concrete, experience • the story of the EYG • and also...a personal experience

  3. WHY • Several youngster group were established in some National Association • The German team thought to invite representatives from other countries, in order to exchange views • And so...Once upon a time, in 1998: the first EFCCA Youth Meeting in Erlangen is the beginning of our story. • The tremendous success led to the second meeting, in Amsterdam, held in 1999 and still funded by a National Association

  4. Amsterdam Days...

  5. 1999 • 50 participants • 12 countries • a fantastic environment • a participant with an idea: to creat a “commission” inside EFCCA for discussing problems related to young people with IBD • one year later: the youngsters spontaneously started using the name “LOEKIE COMMITTEE”

  6. ONE THING TO REMEMBER • IBD EMERGES TIPICALLY IN A RANGE AGE OF 14 - 25 ...BUT IT HAS NOT BEEN ALWAYS LIKE THAT !

  7. Who’s Loekie ?

  8. HOW • NOT AN EASY NEGOTIATION • ECTIC REACTIONS • SKEPTICISM (are they going to resist ?) • GENERATIONAL GAP EMERGES • TECHNOLOGICAL BARRIERS (internet was not that developed...and we had analogic modems)

  9. HOW /2 • Overcome barriers through mediation • Definition of the age-range: 18-30 • Creation (2003) of a Joint Commission • 2004: the EYG was born officially

  10. ACTIVITIES • Vision and mission sharing • Good practices exchange • Common framework co-design • Networking (e.g. CYE) • Concrete projects development and implementation

  11. some of the EYG projects • youngsters developing activities for kids: • the GAME (now available in 11 languages) • the SUMMER CAMP

  12. POLICY MAKING • Preparatory work: • 2 team bulding meetings • 2 focus groups on group management and leadership • quarterly meetings • EYM as key moment of EYG activity

  13. POLICY MAKING /2 • day to day work: • EYG-Zine • dedicated space in the EFCCA GA and Board

  14. GOVERNANCE • 5 youngsters (+ 2 subst.) elected indipendently by the youth delegates at the annual EYM • in charge for 3 years (1 for subst.) • direct management of an annual budget approved by EFCCA GA • considered as a special “EFCCA group” • EYG leader can participate in the EFCCA Board

  15. MUTUAL BENEFITS • Youth Point of View • Better mirror needs and peculiar visions • Dedicated services • “P - 2 - P” approach • Empowerment = > L.O.T.

  16. MUTUAL BENEFITS / 2 • EFCCA perspective: • Possibility of better meet needs of a key target of the disease • Some “generational” problem • Increased use of communication tools • Investing in our future => L.O.T.

  17. L.O.T. • Leaders of Tomorrow program • teaching how the organization work • providing tools and resources • provinding a fertile environment for creativity • learning from each other • exchanging weaknesses and strenght

  18. and... • feeding the new generation of volunteers and leaders (motivated, skilled and inspired) • paving the way towards our handover • spending much less than you can imagine !!!! • does it work ?

  19. ACHIEVEMENTS • 14/48 EFCCA delegates have attended at least one EYM meeting • 4/8 member of the EFCCA Board have been in the L.O.T. program • the actual chairman of EFCCA founded the EYG and led it for 6 years.

  20. Conclusion • YES, WE CAN ! if...UNITED WE STAND !

More Related