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This study explores capturing and reviewing context to support individuals with episodic memory impairments, such as Alzheimer’s disease and anterograde amnesia. By utilizing passive capture methods—sensors that document situational details like sounds, locations, and physiological states—we aim to improve memory recall and maintain a sense of self. Our ethnographic research involves early-stage Alzheimer's patients and caregivers to identify effective cues and strategies for integrating memory aids into daily routines, ultimately fostering independence and confidence in affected individuals.
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Capturing and Reviewing Context in Memory Aids Matthew LeeAnind Dey Carnegie Mellon UniversityHuman-Computer Interaction Institute
Recent Episodic Memory • Recent episodic memory loss • Anterograde amnesia • Difficulty encoding an experience into long term memory • (e.g. Dory from Finding Nemo) • Affects people with Alzheimer’s disease, Korsakoff’s syndrome, other brain trauma, and elders • Research goal: facilitate awareness of recent experiences using capture & review • to maintain a sense of self and continuity • leading to greater independence and confidence April 22, 2006
Passive Capture • What to capture? • Sensors are good for capturing low-level details of a situation. • e.g. objects, people, sounds, location, time, temperature, weather, physiological state • Essentially, this is the “context of memories” • Passive capture • Does not require explicit user action to initiate capture • Minimize the cost of capture April 22, 2006
Reviewing Context • Present the context of memories as: • cues for memory recollection • building-blocks for memory reconstruction • Exercising intact cognitive abilities • Assist memory abilities, not replace it • Mental exercise may slow the progression of degenerative diseases like Alzheimer’s disease (DeVreese, et al, 1997) April 22, 2006
Ethnography • People with early Alzheimer’s disease and their caregivers in their homes • To determine: • What cues to capture? • What is the best way to present cues? • What existing strategies are used to compensate for episodic memory impairment? • How to integrate capture and review into routines? • Results will be used to design a context-aware memory aid for people with episodic memory impairments. April 22, 2006
Questions • What are the best practices in conducting an ethnography of people with cognitive disabilities? • How to evaluate the effectiveness of a memory aid? • Effective if users adopt it? • Effective if users like it? • Effective if users abilities don’t decline? April 22, 2006