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GEMSS Action Group Leadership 2016. Project Scope at Start. Revised Scope. Familiarize & Share. Familiarize & Share: Assessment. Language Content Links Data. A page-by-page review of all conditions was needed. Familiarize & Share: Results. Reviewed Existing Content. 36. 39. 26.
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Revised Scope • Familiarize & Share
Familiarize & Share: Assessment Language Content Links Data A page-by-page review of all conditions was needed
Familiarize & Share: Results • Reviewed Existing Content 36 39 26 Conditions Web Links Reviews • Added New Content • Disclaimer | Neuromuscular Disorders | Autism Spectrum Disorder • IFSP/IEP/504 • Made Recommendations
Familiarize & Share: New Content Source: progenity.com
Familiarize & Share: Results • Shared on Rare Disease Day: February 29, 2016 • Early Intervention providers | Leadership community | Condition specific Facebook groups, Preschool contacts through NH Department of Education, Individual providers • In the week following our outreach efforts there were: • 213 new visitors to GEMSS on Rare Disease Day • 19 new GEMSS Facebook likes • 983 new visitors to GEMSS
Recommendations • Improve & maintain quality of information • Focus & expand educational materials • Continue to strengthen & streamline medically related content • Offer easily accessible templates & fact sheets addressing a broad range of issues • Define & Expand Transitions
Collaborate Action Group members IOD Director – Ann Dillon Project Coordinator, NEGC – Karen Smith NH LEND – Erika Baril Coworkers, friends, relatives, PSU student
Present • Presenting at: