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This presentation by Randy Jackson at the 20th International AIDS Conference explores Community-Based Research (CBR) as a collaborative inquiry form that empowers communities to address health inequities. It highlights the principles of CBR, including community-driven approaches and equitable partnerships, and discusses the importance of academic-community collaborations to identify locally relevant research needs. As traditional research often overlooks community insights, this presentation advocates for meaningful participation and the need for ethical considerations in conducting research within communities.
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Community-based research: A brief introduction Randy Jackson McMaster University 20th International AIDS Conference Melbourne, Australia July 24. 2014
Presentation Outline • What is Community-Based Research (CBR)? • Why CBR and Why Now? • CBR Principles • Why Academic Community Partnerships
Community-Based Research • A form of collaborative inquiry where diverse partners join efforts and commit to identifying, researching, and providing solutions to complex health inequities • Intended make room for meaningful community participation • Partners can include academics, community people, and policy-makers
Community-Based Research: Guiding Principles • Community Driven • Community Relevance • Equitable Partnership & Collaboration • Capacity-Building • Anti-Oppression Framework • Action Outcomes
Why CBR and Why Now • Traditional research is limited • Community members are asking that research focus on locally identified needs (i.e., nothing about us, without us) • Funding, ethics and community requirements
Why Academic/Community Partnerships? Is research a dirty word? • Researched to Death • Academic Driven vs. Community Relevance • Convenient Data Sources • “Drive-by”, “Helicopter” or “Parachute” Research • Lack of resources to support community participation
Why Academic/Community Partnerships • Enhances community relevance • Diversity (e.g., experience) at the research table • Quality/validity • Meaningfully involves communities • Improves KTE strategies
OCAP: Research in Indigenous Communities Decolonizing and Indigenous methodologies Ownership, Control, Access and Possession™ • Ownership is the collective right to how cultural knowledge, data and information is used/handled • Control is self-determination applied in the research context • Access refers to proprietary right to retrieve, re-analyze, and/or interpret research data at any point • Possession refers to resulting data, findings, and publication