Download
1 / 2
20 likes | 148 Vues
On April 23, 2014, notable speakers addressed critical healthcare legislation and initiatives. Sara Weir of the National Down Syndrome Society discussed the Able Act (H.R. 647 & S. 313), while Eric Gascho from the National Health Council presented updates on the MODDERN Cures Act. Steven Grossman of the Alliance for a Stronger FDA provided insights on the FDA's budget. Kathryn G. Schubert emphasized the importance of patient community involvement in the appropriations process. Additional updates included proposed Medicaid policies from Patricia Beggiato, medical progress initiatives from Ellie Dehoney, and new orphan drug development incentives from Julia Jenkins.
E N D
Agenda: • The Able Act (H.R. 647 & S. 313) - Sara Weir, National Down Syndrome Society • MODDERN Cures Act – Eric Gascho, National Health Council • An update on the FDA’s budget- Steven Grossman, Alliance for a Stronger FDA • The Appropriations Process & How the Patient Community Can Get Involved – Kathryn G. Schubert, CDR Government Relations • Update on CMS and their proposed Medicaid Line Extension Rebate Policy – Patricia Beggiato, Mastocytosis Society • Medical Progress NOW! – Ellie Dehoney, Research!America • Ask Your Candidates! - Ellie Dehoney, Research!America • New Incentive Proposal for Orphan Drug Development – Julia Jenkins, Everylife Foundation
