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CANSHALA BMC-CANKIDS SPECIAL SCHOOL for CHILDREN WITH CANCER

CANSHALA BMC-CANKIDS SPECIAL SCHOOL for CHILDREN WITH CANCER. SCHOOL IN SESSION – EVEN WITH CANCER.

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CANSHALA BMC-CANKIDS SPECIAL SCHOOL for CHILDREN WITH CANCER

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  1. CANSHALABMC-CANKIDS SPECIAL SCHOOL for CHILDREN WITH CANCER

  2. SCHOOL IN SESSION – EVEN WITH CANCER School bolsters a young patient’s adjustment to cancer treatment In addition to school broadening the mind, it also heals the soul for a young cancer patient, CANSHALA will not only help patients keep up so they can return to school, but also give them a great emotional boost. Learning with their peers in the classroom environment and having caring interactions with teachers provides a sense of normality. School helps kids’ self-esteem. “If people tell a child he can go to school while going through cancer treatment, he thinks, ‘they must believe I’m strong enough.’ It instills confidence in them.”

  3. Taklu Takli ki Pathshala – THE 1ST OF ITS KIND IN INDIA The “school in the hospital” to serve children with cancer coming to Tata, Wadia, LTMG-Sion Hospital and other Cancer Centers in Mumbai A PPP between local State Govt and Cankids. We are the local partner of MCGM and the school will run by CanKids with collaboration of MCGM, Mumbai Children with cancer, registered at Canshala Mumbai, will not miss out on Schooling or promotion, while under treatment JagannathBhatankar Municipal School, Parel, Mumbai. Nov 16, 2012

  4. CANKIDS KIDSCAN A family support group for children with cancer and their families providing the entire spectrum of childhood cancer support services Set up in Jan 2004 , under the umbrella of Indian Cancer Society today we are our own Society CANKIDS …KIDSCAN. Members of ICCCPO – International Confederation of Childhood Cancer Parents Organizations; adopting the guidelines of SIOP – International Association of Pediatric Oncologists – as our Mission Statement.

  5. Our Vision • To ensure children with cancer enjoy the highest attainable standards of health and facilities for treatment, care and support – in accordance with the Article 24 of the UN Convention on the Rights of the Child. • To ensure 70-90% survival rates for children with cancer in India. Worldwide 70-90% children can be cured of cancer. In India over 70% children still die of the disease • To ensure no child should suffer for want of treatment due to lack of finance • To provide the entire spectrum of support services to any child with cancer anywhere in the country - from moment of diagnosis through treatment, in survivorship, or for palliative care for the terminally ill child and bereavement support for the families • To create child-friendly, comfortable and • pain free environments for children under treatment of cancer CK Day Care & Transition Home- Delhi

  6. We Are • We are a grass-root level field organization • We work in and together with the Pediatric Cancer Units of Cancer Hospitals Pediatrics Depts of Medical College,RCCs, Trust or Private Hospitals • We are Patient Navigators & Advocates, • We identify and bridge the gaps – to ensure best treatment, care and support We are the only organization in India that provides the entire range of support services from moment of cancer diagnosis, through treatment and after, to cancer affected children and their families.

  7. CanKids At A Glance - Dec 2012 • 29 Cankids units in Cancer Centers across India • 4 regional offices & HO in Delhi Cankids Support Units (CSUs) • Pediatric Palliative Care Day Care & Transition Home (DCTH) , Training Center • Home Away from Home • CANSHALA Special School for children • DCTH - In New Delhi near AIIMS Gautam Nagar • HAH Kotla New Delhi & HAH Trivandrum • Canshala– Special School in Mumbai – PPP with BMC • 18 Core Support Services Core Programs & Services Areas • 9 projects & 2 studies • Pediatric Palliative Care • Bone Marrow Transplant fund • Retinoblastoma Fund etc • Studies: Abandonment & Financial Need Projects & Studies Team CanKids • Up to 200 people

  8. CANKIDS EDUCATION PROGRAM II. REINTEGRATE THEM BACK TO SCHOOL/ COLLEGE / SOCIETY –AS SURVIVORS I. KEEP THEM LEARNING DURING TREATMENT

  9. Childhood cancer treatment is long, between 6 months to 3 years. During this period the children, are deprived of regular education; formal or non- formal. They miss out on vital years of learning and development They lack the “normalcy of a child’s life” This impacts their development – physical, mental and social. It makes it difficult for them to reintegrate back into the school system at the end of their active treatment. The special school will help to keep the children learning in a child-centric environment It will provide continuity of education during their treatment period along with individualised remediation and therapeutic intervention as required Basic concept – CHILD LIFE DURING CANCER

  10. “School in the Hospital” – a service in the Cancer hospital or through an NGO – that ensures That the child is registered at the local school - Canshala Base line testing and educational and psycho-social evaluation is done an Individualized Education Program (IEP) is developed for him/her The child attends the school as and when he is able to. His learning is appropriate to his health. Attendance is not compulsory. Learning is through non-formal approaches and focus is on drama/art/music/therapy, skill building, self-esteem, vocabulary, life-skills, and the basic 3 Rs. Curriculum is outcome based. If the child is older and able to cope with the rigor of regular learning, tutorial schooling is provided. Creative adjustments are made for handling the workload, specially to cater to side effects, late side-effects and learning difficulties resulting from treatment “Homebound schooling” is provided to the largest extent possible for the times when the child is too sick to attend the school. This “homebound schooling” may be provided in the ward. Teachers from the Canshala will visit and provide the support for homebound schooling to the child. The local school/school in the hospital keeps the child’s school in his home town apprised and abreast of the child’s treatment, progress, and educational development CANSHALA - School in a Hospital

  11. We share the premises with a BMC Urdu cum Marathi medium school The location of the school is ideal with its proximity to all cancer hospitals, dharamshalas and the train stations Infrastructure support and BMC Mid Day Meal scheme 2 senior teachers , School Registrar from BMC A regular school environment provides a sense of normalcy for the children and parents A child duly registered in the BMC school will not lose on schooling About Bhatankar School and PPP Mid Day Meal Scheme – food, books, uniforms, rainboots!

  12. CANSHALA - FEATURES Counselling Therapy and Health Room L to R : Classroom 1, Classroom 2, School Office cum CK Western Region Office

  13. Schooling Features • Entry test to determine child’s current ability -Baseline evaluation • Individualized education plan (IEP) and remedial help/therapy for children needing them • Regular, ongoing and informal education and evaluation • Curricular and extra curricular activities • Physical Exercise, Playground activity & Sports • Art, Music, Drama Therapy • Counseling for children and parents • Events and celebrations

  14. Benefits of being in a School with Other Facilities Playground Computer Laboratory Computer Labs Auditorium/hall for functions/events Auditorium & Hall

  15. Local Management Committee:  Additional Commissioner (City), BMC, Mumbai Chairman, Education Committee, BMC, Mumbai Education Officer, BMC, Mumbai Administrative Officer (F/S), BMC, Mumbai Chairman, Cankids, Delhi Regional Director, Cankids, Mumbai Regional Project Officer, Cankids Mumbai Mentor, CanShala- Mumbai Principal, CanShala, Mumbai Education Project Officer, Cankids, Mumbai MANAGEMENT

  16. Consulting Oncologist (Hon) Consulting Psychologist (Hon) School Advisor/ Mentor ( Hon) 1 Principal 4 Teachers/ Special Educators 1 Counselor Part time : art, drama and music therapists Part time Physical Education , Sports and Play Instructor 1 School Social Worker cum Administrator 1 Accountant 2 Care Takers TEAM CANSHALA

  17. TIME LINES

  18. Capital Cost (one time) Running & Maintenance WE LOOK TO YOU FOR HELP Contact : surabhik@yahoo.com

  19. Individual Donors Institutes/ Organizations/ Trusts Corporates The initial funding is managed by Founder Chairman of CanKids to start the school FUNDING SOURCES

  20. Appeal from the CK Team “We set out to find place for ourselves in Mumbai, as our demerger from Indian Cancer Society meant leaving the Cubicle we had in their offices in Parel. Through Cankids Ambassador Arvind Singh’s good offices we met Additional Commissioner, Mr Adtani, who suggested we run a Special School for children with cancer, for the BMC. The project has developed fantastically and fills a niche that was sorely lacking for children with cancer. Coming to Mumbai for treatment The kids are loving it. They want to study. They refuse to do “art and craft’! Help us to make a success of the 1st of its kind - CANSHALA SurabhiKakar – Canshala Mentor (Hony) & PritiDhall, Regional Director Cankids Mumbai (Hony)

  21. CANSHALA – a way forward • The success of this first of its kind school will enable us to execute similar projects in other States, and work at the Central government level to advocate: • to State Education Departments to mandate schooling for children during treatment • b. To Amend Education and Rehab Laws of the country , to protect the rights of disabled or health impaired children with cancer • c. secure free and appropriate public education for the cancer child • d. and ensure that the child is given an Individualized Education Plan, permitted homebound schooling and a tailor made curriculum around his/her illness.

  22. THANK YOU! All set to go...

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