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PATIENTS’ PERSPECTIVE ON e-HEALTH

EPF AGM, Brussels 19 May 2010. PATIENTS’ PERSPECTIVE ON e-HEALTH. e-Health. The application of Information and Communication Technologies (ICT) to Health care. EPF and e-Health. CALLIOPE project CALLepSOS cooperation RENEWING HEALTH project Chain of Trust project

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PATIENTS’ PERSPECTIVE ON e-HEALTH

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  1. EPF AGM, Brussels 19 May 2010 PATIENTS’ PERSPECTIVE ON e-HEALTH

  2. e-Health The application of Information and Communication Technologies (ICT) to Health care

  3. EPF and e-Health • CALLIOPE project • CALLepSOS cooperation • RENEWING HEALTH project • Chain of Trust project • Joint Initiative/Thematic Network on e-Health governance • E-Health Users Stakeholder Group • Consultations, presentations, debates

  4. Recurring Themes • Ethical issues • Security issues • Legal framework • Trust and acceptability from users • Reimbursement issues • Electronic health record • Ownership of data • Access to record • Input from the patient • Consent – transfer and use of data • Cross-border dimension

  5. Consulting EPF Members • Crucial need for evidence • Perspective from patients users and non-users across diseases and countries • EPF consolidated position • The HOW to be conceived – key now is ENGAGEMENT and COMMITTMENT e-HEALTH WILL BECOME PART OF PATIENTS’ LIFE LET’S NOT MISS THE OPPORTUNITY TO SHAPE THE PROCESS AND THE MECHANISMS!

  6. Thank you! Liuska.sanna@eu-patient.eu

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