Duke Center for Community Research

1. Duke Center for Community Research Presentation to the Primary Care Site-Based Research Group December 11, 2007

2. Presentation Overview • NIH Roadmap and DCCR • DTMI and DCCR • Goals • Structure • Community Health Research Liaison Center • Community Health Research Training Center • Electronic Health Record • Community Advisory Board • Executive Steering Committee • Current projects and plans

3. NIH Roadmap and DCCR Re-Engineering Clinical Research Through the Clinical and Translational Science Awards (CTSAs) Discovery Clinical Research Translation and Adoption Translation Global Health Basic Discovery Preclinical Research PD/PK/ Toxicology Proof of Concept In Humans Phase II, III and IV Health Service & Outcomes Research Guidelines & Adoption Community Health Trends Global Health Research & Service DCCR Seamless Integration New Timeline 10 -12 years

4. Regulatory Affairs Project Leaders and the Portal Office The Duke Translational Medicine Institute (DTMI) and DCCR Acronym Key:

5. DCCR Goals: • provide culturally competent, community-based training, outreach, and support services to fully engage the Durham community in all aspects of the research process; • establish a robust training capacity to train researchers and trainees to work effectively in community settings and with diverse patient populations;

6. DCCR Goals (continued) • establish outreach and support—including relevant data acquisition—to community-based health and health-related agencies and organizations to help them formulate research questions directly relevant to their patients’ and organization’s needs; and • measure the impact of innovative, community-engaged research on the improvement of community health.

7. DCCR Community Research Liaison Center • Connect Duke and local communities, practices and organizations • Outreach and training to assist communities with data and to connect communities with researchers • A virtual library for: • Community groups to learn about themselves • Practices to identify opportunities improvement • Researchers to learn about communities

8. Community Health Research Training Center • Train and prepare researchers to work successfully with communities • Train and prepare learners/trainees to work successfully with communities • Electronic training modules • Modules on community engagement in research are under development • On-site training programs • Conduct formal regulatory training and testing for community engagement

9. DCCR Electronic Health Record • Covers citizens of Durham County • Captures data for Durham County • Develop analytic techniques using data from the DSR • Dealing with covariates • Meshing advanced laboratory data with long term outcomes • Produce rapid & measurable improvement of community health status • Can perform rapid turn-around intervention studies

10. DCCR Community Advisory Board • MaryAnn Black, MSW, LCSW, Office of Community Relations, DUHS • Victor Dzau, MD, Chancellor, DUHS • Libby Barnes, President/CEO, Durham Chamber of Commerce • Lewis Cheek, Durham County Commissioner • Arnett Coleman, MD, DUAP Metropolitan • Elaine Hart Brothers, MD, Community Health Coalition • Sammy Haithcock, Director, Durham County Department of Social Services • Reverend Kenneth Hammond, Union Baptist Church • Reverend Joe Harvard, First Presbyterian Church • Carl Harris, EdD, Superintendent, Durham Public Schools • Ellen Holliman, Director, The Durham Center • Brian Letourneau, MSPH, Director, Durham County Health Department • Andrea Bazan-Manson, MSW, President, Triangle Community Foundation • Adam Michaels, Special Assistant to the Chancellor • Earl Phillips, Director, Housing and Community Development • Evelyn Schmidt, MD, Lincoln Community Health Center • David Smith, Friends of Durham • Leonora Smith, Community Representative • Cheryl Shiflett, Community Representative • Gwynn Swinson, VP Government/Community Relations, DUHS • Marilyn Walls, President, Creative Mark, Inc.

11. DCCR Executive Steering Committee • Maryann E. Black, M.S.W., L.C.S.W., Associate Vice President, Community Affairs, Office of Community Relations, Duke University Health System • Robert M. Califf, M.D., Professor, Director of the Duke Translational Medicine Institute and Vice Chancellor for Clinical Research, Duke University Medical School • Victor J. Dzau, M.D., Chancellor for Health Affairs Duke University, and President and CEO, Duke University Health System • Catherine L. Gilliss, D.N.Sc, RN, FAAN, Professor and Dean, Duke University School of Nursing and Vice Chancellor for Nursing Affairs • Sherman A. James, Ph.D., Professor, Duke University Terry Sanford Institute of Public Policy • Michael H. Merson, M.D., Professor, General Internal Medicine, Director, Duke Global Health Institute • J. Lloyd Michener, M.D., Professor and Chairman, Department of Community and Family Medicine and Director of the Duke Center for Community Research, Duke University Medical Center • Marie Lynn Miranda, Ph.D., Associate Professor of the Practice, Director of Undergraduate Programs, Duke University Nicolas School of the Environment & Earth Sciences

12. DCCR’S Current Projects • Website • Library • Virtual • Core/physical • Grant support (19 grants) • Participation in community committees • Training/education • Electronic Health Record

13. Provide additional training in community engagement for interested faculty, and in academic engagement for interested community groups Link interested community groups and Duke faculty, learners Implement integrated electronic records with guidelines in the vast majority of Durham practices Share data from the Electronic Medical Record with community groups and researchers Facilitate new wave of project proposals Improve the health, and the trust in medical researchers, of the Durham community and more broadly Plans