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Judging requests for support

Judging requests for support. Freya Tyrer, NIHR RDS for the East Midlands. Role of administrators in judging requests for support. Telephone/E-mail requests. NO SUPPORT. SUPPORT. Clinical Trials Unit. Advice coordinator.

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Judging requests for support

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  1. Judging requests for support Freya Tyrer, NIHR RDS for the East Midlands

  2. Role of administrators injudging requests for support Telephone/E-mail requests NO SUPPORT SUPPORT Clinical Trials Unit Advice coordinator E-mail list of stats help/training courses/resources available elsewhere Advice coordinator/Lead RDS Team Extended to other specialties?

  3. Issues and Concerns • Would like to be able to refer to someone –not simply take away support! • Back to advice clinics!

  4. Group work • Is the request for advice and support appropriate? • What type of support is required? • How can this support be coordinated? • Is funding stream appropriate?/Most likely source of funding

  5. Project 1: Metabolic syndrome Aims of project • To explore how patients receive the diagnosis of metabolic syndrome (clustering of risk factors for cardiovascular disease, including central obesity and/or BMI>30, hypertension, dyslipidaemia and microalbuminiuria) • To develop an intervention for people with metabolic syndrome for application in primary care  

  6. Project 1: Advice given Initial face-to-face meeting between advice coordinator and client 1. Design First aim refined to exploring patients’ views of receiving a diagnosis of metabolic syndrome and acceptability of interventions to reduce risk of cardiovascular disease. 2. Literature Advice coordinator recommended that GP explore the literature in more detail and refine possible research questions.

  7. Project 1: Advice given Post-meeting 1. Information Officer Advice coordinator asked information expert to provide guidance on how to carry out a literature review 2. Writing up Advice coordinator worked up a draft project plan and developed a funding application (to Primary Care Research Consortium) for some first stage pilot work. Funding was accepted.

  8. Project 1: Advice given 3. Signposting • Advice coordinator signposted GP to a qualitative researcher within the University • Advice coordinator helped to set up a steering group comprising a Consultant Endocrinologist, PCT Director, Dietician, two university Academics and a Clinical Psychologist. 4. PPI PPI advisor contacted two lay people with metabolic syndrome were approached through a local diabetes user group. They agreed to participate in the study and were included in the steering group.

  9. Project 1: Advice given 5. Statistical support RDS statistician was asked to advise on the project. He also joined the steering group. Future support The Clinical Psychologist will now lead a grant application to the RfPB for a more detailed pilot study prior to designing an RCT

  10. Project 1: Observations &Cautionary points Team work Advice coordinator, information expert, PPI advisor and statistician all involved with the grant application Points of caution • It can be difficult to demonstrate patient benefit with purely qualitative studies. Consider (i) developing guidelines; (ii) developing an intervention; (iii) developing an educational programme.

  11. Project 2: Outreachchemotherapy service Aims of project To identify and quantify: • Patient benefits (if any) • Quality of life scores • Satisfaction with the ‘new’ service • Costs of receiving chemotherapy at the new service compared with routine outpatient care.

  12. Project 2: Advice given Initial face-to-face meeting between advice coordinator and client Discussed project with principal investigator. Post-meeting 1. Facilitating discussions • The advice coordinator ‘played a key part in facilitating discussions between the academic and clinical teams’

  13. Project 2: Advice given 2. Ethical advice The advice coordinator gave ‘ethical and practical’ advice 3. Quantitative analysis The advice coordinator approached the RDS statistician who gave advice on statistics and survey design.

  14. Project 2: Observations &Cautionary points Points of caution • Whilst the RfPB does accept service evaluations, they need to be led by external ‘unbiased’ researchers

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