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Insights on Living with ADHD: Young People and Parents Focus Group Session

Engage parents and youth with ADHD to gather views, ideas for service improvement, and support advice in a structured session. Utilize quotes as stimulus material for discussions and encourage active participation while ensuring confidentiality and follow-ups.

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Insights on Living with ADHD: Young People and Parents Focus Group Session

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  1. Using Focus Groups to access views of Parents and Young People with ADHDYoung People’s FG Our Dynamic Earth 5th November, 2007

  2. Introduction • Explain purpose of session • to find out about their views and experiences • to find out what ideas they have for improving services • Give and obtain assurances of confidentiality (Facilitator AND participants) • Ask each person to introduce themselves (how long they’ve had ADHD)

  3. Structure and Timings Scribes – Use cards to keep facilitators to time. • Introductions (5 mins) • 1&2. First two questions as warm-up (5 mins) • 3. Response to quotes (10 mins – 2.5 mins each) • 4. Flip chart exercise re. ‘wish list’ (10 mins) Service provision in general • 5. Advice they’d give and wind-down (5 mins) • De-briefing (5 mins)

  4. Questions Young People 1. What’s difficult about living with ADHD (for young people)? 2. What helps OR Who helps you to deal with your ADHD? 3. QUOTES re. educational, social and health issues (using quotes - explain that these came from the questionnaire and ask for responses) 4. What would your ‘wish list’ for services and support look like? (with flip chart) 5. What advice would you give to someone recently told they have ADHD?

  5. Quotes to use as ‘stimulus material’ with Young People “Difficulties with remembering and being organised… Taking my medication…Being different from other people at school. Not being treated as normal. Not being able to perform as well as school as I should” “Being upset, angry and frustrated …Other people and my mates not understanding.” “When I can’t control my behaviour … Problems with sleeping…Not understanding ADHD myself.” “People can help me at school. My Mum / Dad / support worker can calm me down and explain about ADHD.”

  6. Hints on Running Focus Groups • Facilitating contributions • try to include everyone, but • work on tolerating silences • pick up on non-verbal cues Scribes – Try to take note of who is saying what (e.g. someone recently diagnosed or with siblings with ADHD) • Focusing discussion - bringing people ‘back ‘to task’ • Encouraging interaction between participants

  7. De-briefing • Repeat / elicit further assurances about confidentiality (facilitator AND participants) • Tell them how we’re going to use the information they’ve provided. (Explain about feedback at today’s event and further reports.) • Explain where they can access further information (websites, leaflets etc.) • Thank them for their contribution

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