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This presentation by Jill Manthorpe and Kritika Samsi, held at the Dementia Congress in November 2009, explores early insights of Alzheimer’s Society staff regarding the Mental Capacity Act (MCA) 2005. The Act empowers individuals to make decisions and voice their preferences regarding their care when they may lose the capacity to do so. Key findings reveal staff awareness of the MCA, its potential to enhance rights, but also concerns about its complexity and implications for advocacy. This study contributes to understanding the Act’s impact on service delivery and support in dementia care.
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Jill Manthorpe & Kritika Samsi ‘If it is used properly… it can only be of benefit to people’: early views of local Alzheimer's Society staff of the Mental Capacity Act 2005
Outline of presentation • Background • Research questions • Recruitment & participants • Findings • Implications Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Background • Mental Capacity Act (MCA) 2005 – implemented 2007 in England & Wales • MCA enables people to plan and make views known, should loss of capacity to make own decisions occur • Additional safeguards of new offences and requirements to abide by Code of Practice • Investment in rollout by Department of Health and locally Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Research questions • What is Alzheimer’s Societies’ staff understanding of the MCA? • Early experiences and expectations • What is their role in information, advice, advocacy and support? • How does the MCA affect their role? Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Recruitment & Participants • Range of AS groups in North London region • Confidentiality and anonymity assured • Qualitative interviews with 9 AS representatives conducted • 45 minutes – 1 hour Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Findings Four main themes identified: • Participants aware but varied knowledge • See MCA as enhancing rights • Concerns about cost and complexity • Information, some advice, less advocacy Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Varied knowledge • Different exposure and training • Thought they should be better than they were “I must say it was a bit dry and a bit difficult to concentrate, you know, obviously some of it stuck but not an awful lot I am afraid, ..both of my senior staff were supposed to go on training but one was sick on the day…” – AS1, branch manager Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
MCA enhances rights • of people with dementia & carers “I think it gives people choice…it allows people to make plans, It does help professionals to know what people want, it gives them an insight… Yes, it gives (carers) a little bit more security of what they are doing..” – AS8 development manager Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Cost and complexity • Related to Lasting Power of Attorney • Quick signposting to legal practitioners • Not aware of cost going down Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Information, some advice, less advocacy • Mainly around LPA, less around other features • Very little around safeguarding measures • More information than advice • Advocacy not developed • Little work with ‘hard to reach’ groups Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Implications • Recognise potential of MCA but uncertain • Limited engagement with local implementation networks • If initial training missed… what then? • Audit tools being developed by DH & SCIE – might be useful Jill Manthorpe & Kritika Samsi Dementia Congress Nov 2009
Thank you Jill Manthorpe & Kritika Samsi Jill.Manthorpe@kcl.ac.uk This study is funded by the NIHR see www.evidem.org.uk