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Picture of Health…

…Perceptions of Health. Picture of Health…. What may seem simple, can often be most complex. The Proof For ‘1+1=2’ Is 300 Pages Long!. eHealth Ecosystem. Even Defining the Solution Can Be Complex !. =. +. Where To Start ?. Ecosystem 52,000,000 Search R esults. eHealth 2005

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Picture of Health…

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  1. …Perceptions of Health Picture of Health…

  2. What may seem simple, can often be most complex. The Proof For ‘1+1=2’ Is 300 Pages Long!

  3. eHealth Ecosystem Even Defining the Solution Can Be Complex! = + Where To Start ? Ecosystem 52,000,000 Search Results eHealth 2005 51+ Definitions Work with everyone to implement the solution! INTEGRATE Work with the people who can solve the problem! VALIDATE Start with the people who have the problem! INNOVATE

  4. Calmness Possibility Trust Hope Safety Security Reassurance Gratefulness Direction Communication Security Excitement Lighthouse Recognised All Over the World

  5. Extremely Important to Address the Needs of Specific Communities… Epilepsy Bi-Polar Disorder Haemophilia Extremely Important to Ensure EHR’s Will Work in Collaboration with National Standardised Electronic Health Records Just as Important That EHR’s built with PHR’s to Aid in Self Management of Conditions; Increase Engagement with Health Care Professionals; Are Easy to Implement and USE and Most Importantly Address the Needs of All Patients

  6. Irrelevant of diagnosis, every patient at some stage, will have to manage 4 basics: • Medications/Therapies • Health Care Appointments • Emotional/Physical/Social Impact • Communication • Managing a chronic illness can cause huge stress and risk to patients and carers. So can you imagine how hard it might be to manage more than one? High Blood Pressure Heart Disease Diabetes Cancer 1.3 Million Irish People Have a Chronic Illness 15 Million British People Have a Chronic Illness 127 Million Americans Have a Chronic Illness Depression Arthritis Stroke Asthma The MediStori is like a Filofax, but for health.

  7. More disruptive than any technology…! Is that…Paper??? In Today’s World? That Will Never Work! APPS ARE THE ONLY WAY!

  8. Really? Are you sure? How many of you take notes on pen & paper today? How many public hospital waiting rooms have Wi-Fi? Did you ask me?

  9. I am Olive. And I am the Patient. Who Am I? #hellomynameisOlive. I am known as being… • An Expert by Experience – DCULiterature Review PPI ; NCGP for PEWS; Maternity Strategy • Trained with Stanford University Self Management Facilitator Chronic Disease • Completing Fellowship with ISQua in Quality Improvement; Training in UX Design • Represented Ireland for the Clinton Global Initiative (Top 10 out of 10,000) • Showcased by Global Health Leader Maureen Bisognano, IHI in Qatar • Supported by Enterprise Ireland, IPU, IPA, Irish Carers Association • **Judges Choice Sccul Special Merit Award 2014 • **JCI NATIONAL Award Winning Medical Innovation 2015 • **Mumtrepreneur of the Year with Mums and Tots.ie 2015 • Lectured in UCD; Keynote Speaker: Community / Youth Worker • Seen on RTÉ News, Prime Time, Today FM’s Sunday Business Show, UTV Ireland • Supported by An Taoiseach – “Save our Health Service Millions” … Because…and without sounding egotistical… And I am known as the Founder of the MediStori I am also known as Mum, Sister, Daughter (depending on the mood!) So why did I see a need for such a thing? But I’m not a doctor or a health professional!

  10. My Problem… When did I give right medication? So hard to get diagnosed! Trying to remember appointments! Communication Breakdown! Someone who understands!

  11. Could it Help Others?

  12. There is an urgent need for a universal, unified approach. And it needs to start simple. Medication Non-Adherence WHO:“Approx. 50% do not take medications as prescribed…” -€30 million Costs on Health Systems “…all medication-related hospital admissions in the US approx. $100 billion a year…” Digital Divide “the digital divide …..those in most need are left behind …” Individualised Health Plans “…the ability to develop individualized treatment plans is of critical importance for effective care”

  13. This Was the Toolkit That Saved My Dad’s Life. We focus on the individuals needs, not the individuals disease. The Water Tablet! The Inhaler! • Transparency for Patient, Carers, Paramedics • No Batteries • No Passwords • Suitable All Ages REALTIME DATA!

  14. The Problems are Bigger than Paper or Technology! Our Hospital Booklet Vaccination Asthma Packs COPD Care Packages Heart Passports Unhealthy Competitive Cultures Existing in HealthCare Impact on Patient Safety

  15. P4 Medicine Institute – Proactive vs Reactive… Personalized, Predictive, Preventive, Participatory Solutions Need to Be Simple. Cultures Need to Be Converted. Charities Need to Be Collaborating. Patients Need to Be Participating. Professionals Need to Be Proactive. Policy Needs to Be Practical. Projects Need to Be Proven. We Need to Work To Put Patient Safety Agenda Before Profit, Pride, Positions or Power…Prove What Works

  16. Step 2. Validate • Collaborative, Comparative Study… • Research by NUIG – Dr Padraig MacNeela • Funded by HSE QID and Acutes • Objectives • Make Changes Based on Patient & Health Care Professional Needs • Who & Where is it Best to Recommend it to Patients • See Issues Patients and Carers were Having • Show Cost Savings

  17. So What Did They Say? 95%Participants Not Taking Medications Correctly!

  18. What else did we learn? • 6% Recommend Charities to Patients- 85% Feel Charity Additional Health Service! LINK • 34%, 24% and 22% respectively wanted to be part of the study because they wanted help with medications, appointments and health information. SAME ISSUES AS HEALTH SERVICE • 96% wrote down questions for HCP prior to visit – ACTIVATED PATIENTS/CARERS! • 74% struggled to manage appointments – IRRELEVANT OF CONDITION • 69% had a pre-existing condition and were awaiting another diagnosis - SYMPTOMS • 50% answered had other loved ones in the house with a condition– FAMILY CENTRED CARE • 57% thought that others couldn’t give medications correctly - CARERS • 87% were not given a medical device in a hospital to help with medications - CRITICAL • 89% found it difficult to recall health information for HCPs – IN HOME • 69% kept a diary system at home – ALL HANDMADE SYSTEMS– EXCEL AND PAPER! • 45% contacted GPs and PHNS to find out if vaccinated or not – HEALTHY POPULATION • 87% did not receive PHR from health providers – RECOMMENDATION NEEDED • And what did they say about MediStori? • Loads of Changes to Be Made…But…

  19. 75% of participants said the MediStori had impacted on how they managed medications >90% said they liked the size & colour of MediStori <80% said they would like to see an electronic version also. • >90% said MediStori was a good idea and that it was well demonstrated to them >80% said it had impacted on how they communicated information to health care professionals >90% said they felt it could help them with their specific needs But What Was Their Experience? >80% said it had impacted on how they managed appointments >65% said it had impacted in how they managed their loved ones condition

  20. “It will make my life easier having this, it has already helped me keep track of everything, I have so many appointmentsat the moment so it is great to keep track of them.” “It’s brilliant! Been tellingmy friends about it. “Thanks for filling a gap in my care.” “The people behind this are very obviously extremely caring and experienced people with the patient’s best interests at heart.” “I've pretty much said it all, but I just want to once again thank the team for all of their hard work. They have made a difficult situation easier to deal with.” Just, Thank You.

  21. Total Saving of €1.25m for 10,000 Patients (and only half of them using it!) Total of 1.3 million people in Ireland with Chronic Conditions - Do the Maths! Minimum Combined Saving of €250 per Patient per Annum

  22. Step 3 - Integrate... …National Roll Out Easy, Right?

  23. Can this be done? • Champions • Promoters • Engagers The Patient is The Only Link

  24. Conversations lead to collaborations… People, not products, are the key to success… • Dr Philip Crowley – National Director Quality Improvement & Patient Safety • June Boulger – National Lead Patient & Public Involvement in Acutes • Mayo General Hospital – Chief Pharmacist Blánaid O’Connell, Charlie Meehan • Temple Street Hospital – Grainne Dowdall, Child Health Information Co-ordinator • Dr Joseph Dalton – Digital Health Strategist • Deirdre Munro – CO-Design & Global Village Midwives Founder • RCPI – Dr John Fitzsimons & Dr Peter Lachman • Tim Delaney – Chief Pharmacist Tallaght Hospital • Dr. Peter Sloane –GP WHO GAMA Project – Clinical Programmes and Strategy – • Collaboratively working with the Irish Patients Association, Irish Pharmacy Union, Irish Carers Association plus all/any other organisations as need arises…

  25. Patient + Professional = Partnership • Benefits For Patient, Carer & Health Care Professional • Medication Management = Medication Adherence • Less Miscommunication = Less Errors • Joined Decision Making = More Confidence • Having Records of History = Less Re-Testing • Family History = Accurate Diagnosis • Self- Management = Less Re-Admissions • Feeling Listened = More Reassurance • Informed Decisions = Safer Standards • Less Stress - Less Risks - • Less Time - Less Fears - Less Costs

  26. Going forward… • World Health Innovation Summit • 10th & 11thMarch UK Slow and Steady Wins the Race

  27. “The most exciting breakthroughs of the 21st century will not occur because of technology but because of an expanding concept of what it means to be human” John Naisbitt, Author & Futurist Innovate. Validate. Integrate.

  28. We are all here to either get better or to help someone get better. And one day, our role may be switched to the other side… Collaboration is KEY. =============================== We Need to Focus on the Now and the Tomorrow Will Happen.

  29. Thank You for Having Me! #hellomynameisolive

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