1. Query HealthConcept Mapping Activity

2. Overview • A (very basic) background on concept mapping • The problem that the Concept Mapping workstream is trying to solve • Five questions for you • Any questions for us and general discussion

3. Background • The majority of healthcare systems maintain their own dictionaries • The terms in these dictionaries are not compatible with others • ‘PA/Lateral CXR’ vs. ‘2-view chest x-ray’ • In order to speak the same ‘language’, we have to: • Agree on the same language • Translate what we say into this agreed upon language • Translate what we hear back into our own language • This translation exercise is what is termed ‘concept mapping’

4. Referral Labs, Pharmacies, etc… Tertiary Care Center County Hospital Provider Directory Global Patient Index Health Departments Concept Dictionary Private Hospital Community Hospital A Community Hospital B

5. Concept Mapping Illustrated • Other Code Set • Code 1 • Code 2 • LOINC • Code 624-7 • Code 6460-0 Clinical Concepts • SNOMED CT • Code DE-14213 • Code DE-10100 Map Vocabulary Codes ↔ Concept Dictionary • ICD 9 • Code 486.00 • Code 481.00 UMLS, etc. • ICD 10 • Code J 18.9 • Code J 18.1

6. The Importance of Concept Mapping… and the problem at hand • Query Health will disseminate queries to many data sources • It is unlikely that any of these data sources will understand that format natively • Each data source will have to map their own concept dictionary to the concepts expressed by the query • Some larger organizations and information exchanges may already have mappings to standard vocabularies, but many others may not • In order to ease the burden of participating in Query Health, how can we facilitate the concept mapping exercise?

7. Where the Concept Mapping Activity comes in • As part of the Query Health initiative, we suggest undertaking work to discover the best practices in concept mapping • The ultimate goal of this effort would be a guide describing these best practices Question 1 Should we undertake this work?

8. Question 2 How should we do this study? • Semi-structured interviews • Structured survey • Focused group discussions • Literature Review • Another methodology

9. Question 3 If we use a methodology that collects information from experts (surveys, interviews, FGDs), who should we target? • Information Exchange Implementers • Creators of tools to facilitate mapping (i.e. RELMA for LOINC) • Other groups? From which organizations?

10. Question 4 If we perform a literature review, what terms should we include? • AND Mapping • AND (LOINC or SNOMED or SNOMED-CT or ICD-9 or ICD-10 or ICD-9-CM or ICD-10-CM or ICD-10-PCS or RxNorm or CPT) • Other terms

11. Question 5 How should we (your support team) proceed before the activity starts in 3-4 weeks? • Do nothing; all work from study design onward should be in the Concept Mapping workstream • Have the Implementation workgroup approve a study design and the support team should begin collecting data; all data analysis should be done in the Concept Mapping workstream • Have the Implementation workgroup approve the study design and the support team should collect data and analyze it; the Concept Mapping workstream can review the analysis • Another approach

12. Questions and General Discussion