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Hope Into Life

Hope Into Life. The Lifesaving Gift of Organ and Tissue Donation. Lola Lewis Donation Coordinator. About Gift of Hope. Federally designated not-for-profit organ procurement organization Coordinates organ and tissue donation with 180 hospitals in Illinois and northwest Indiana

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Hope Into Life

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  1. Hope Into Life The Lifesaving Gift of Organ and Tissue Donation Lola Lewis Donation Coordinator

  2. About Gift of Hope • Federally designated not-for-profit organ procurement organization • Coordinates organ and tissue donation with 180 hospitals in Illinois and northwest Indiana • Works with 9 transplant centers • Provides professional, public education • Provides ongoing support for donor families Our mission: to save and enhance the lives of as many people as possible through organ and tissue donation

  3. Donation is Critical • More than 120,000 people in the U.S. are waiting for a lifesaving organ transplant. • More than 5,300 people are waiting for an organ transplant in our donation service area. • Last year, nearly 300 people in Illinois died while waiting for a lifesaving organ transplant. Billi, liver transplant recipient, lived and gave life to Jaxon

  4. 122,429* Waiting Nationwide Kidney . . . . . . . . . . 100,431 Pancreas. . . . . . . . . 1,195 Kidney/Pancreas. . . . . 2,037 Liver . . . . . . . . . . . 15,735 Intestine . . . . . . . . . 268 Heart . . . . . . . . . . . 3,958 Lung . . . . . . . . . . . 1,660 Heart/Lung . . . . . . . . 53 *As of 05-15-14

  5. Illinois Donor Registry • As of January 1, 2006 • Illinois had the largest registry of intent with over 6 million registered donors. • Illinois is the 43rd State to adopt 1st person • It is an all or none registry • Old registry is not automatically rolled into the new one. • Legally binding no additional witnesses needed. • Still very important that families share their wishes with each other.

  6. When is Donation an Opportunity • Tissue donation • Any patient who dies anywhere in the hospital can be a tissue donor: • If there is a known time and cause of death • Organ donation • Any ventilated patient in a critical care setting can be an organ donor (can also be a tissue donor): • If there is a declaration of brain death OR • If there is a decision to withdraw life-sustaining therapies, with the expectation that death will occur

  7. Organ Donation is not as common as you might think… • Approximately 10% of hospital patients die from types of injuries/illnesses that make them potential organ donors • Donations do not occur in about 93% of these cases: • Patients deemed medically ineligible • Family declines to give donor authorization/changes mind • Other reasons • Less than 1% of all patients who die in the hospital become organ donors! • That is around 7 donors per 1000 deaths. • Out of 37,034 hospitals deaths in 2012, there were 270 organ donors.

  8. Why Donated Organs Are Needed Heart: heart disease—congenital, hypertensive cardiomyopathy Lungs: COPD, emphysema, cystic fibrosis Liver: chronic hepatitis, liver tumors, cirrhosis Pancreas: type 1 diabetes Kidneys: hypertension, diabetes, polycystic kidney disease Intestine: short bowel syndrome

  9. Organ Viability Heart 4-6 hrs Lungs 4-6 hrs Liver 6 hrs Pancreas 12-18 hrs Kidneys 36+ hrs Intestine 12-18 hrs

  10. The Organ Donation Process • How exactly does this work anyways? • A Patient is referred to Gift of Hope. • Gift of Hope determines medical eligibility • Speaking with the family. • Paperwork • Placing of organs • How long does this take?

  11. Tissue Donation

  12. Tissue Donation is Critical • Tissue Donation • 1 in 20 Americans will need some type of medical tissue transplant during a lifetime • 900,000 human tissue (bone and soft tissue) transplants are performed per year • Donated tissue often provides benefits that outweigh those of non-tissue implants and autografts. • A single donor can enhance as many as 200 lives • Skin Donation • Helps an estimated 500,000 burn patients annually • Thousands require reconstructive procedures

  13. How Donated Tissues Are Used Cornea/eye: restores sight for patients with corneal damage or disease Heart valve: replaces heart valve for patients with heart defects, infection or damage Bone: saves limbs, replaces joints for patients with bone cancer, bone fractures, degenerative diseases Soft tissue: repairs or restructures injured tendons and ligaments Vein: replaces femoral or saphenous veins for patients with vascular disease or diseased/blocked arteries—limb-saving measure

  14. How Donated Tissues Are Used (cont’d) Skin: skin graftsfor patients with severe burns or surgical wounds—lifesaving measure Juvenile cartilage: promotes healing for patients with cartilage defects caused by disease, stress to knee brought on by physical activity and/or age Adipose: fatty tissue removed from the abdominal area used to help patients with hard-to-repair injuries like bone fractures Costal cartilage: soft tissue that connects the ends of the ribs to the sternum; used primarily for functional or structural implants in patients undergoing maxillofacial reconstruction

  15. The Tissue Donation Process • How exactly does this work anyways? • A Patient is referred to Gift of Hope • Gift of Hope determines medical eligibility • Speaking with the family • How long does this take?

  16. The Impact of 1 Tissue Donor • 43 Year Old Male • Central Illinois Donor • January 2012 • Number of lives impacted to date: • 123

  17. The Impact of 1 Tissue Donor on the Nation

  18. GOH Donor Family Services • More than 5,700 letters to families each year • More than 1,000 inquiries each year • Donor families • Transplant recipients • Transplant coordinators • Quarterly Donor Family Advisory Council meetings • Annual remembrance ceremony • Transplant centers provide recipient outcome information • Generate letters to donor families with general information about recipients and how they are doing • We send follow up and thank you to staff at donor’s hospital, funeral director and coroner/medical examiner (if involved)

  19. Donation benefits to families • Donation can help to re-establish control • Donation can help during the grief process • Donation can be a way to memorialize a loved one • Donation can honor a loved one’s wishes • 64% of families do not remember the exact words used, but remember the care and support they received upon the loss of their loved one • 89% would donate again

  20. Questions and Concerns • Who pays for donation? • Will donation interfere with my funeral arrangements? • Will I hear about the transplant recipients and the outcome? • Can I correspond with recipients?

  21. Steve’s Story…

  22. How to Join the Illinois Donor Registry • Call 800.210.2106 • Visit any driver’s license facility. • Go to the secretary of state’s web site at: • www.lifegoeson.com • For additional information about donation, visit: • www.giftofhope.org

  23. Lola Lewis • Donation Coordinator • 630-758-2873 • llewis@giftofhope.org • Gift of Hope Web site (GiftofHope.org)

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