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AIDD Updates

AIDD Updates. Jennifer Johnson and Sara Newell June 24, 2013. Administrative Updates. Grants Management Updates. AIDD grants administered by ACL/OGM OGM Fiscal Points of Contact: Yi-Hsin Yan, Management and Program Analyst: Phone: 202-357-3436 E-mail: yi-hsin.yan@acl.hhs.gov

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AIDD Updates

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  1. AIDD Updates Jennifer Johnson and Sara Newell June 24, 2013

  2. Administrative Updates

  3. Grants Management Updates • AIDD grants administered by ACL/OGM • OGM Fiscal Points of Contact: • Yi-Hsin Yan, Management and Program Analyst: • Phone: 202-357-3436 • E-mail: yi-hsin.yan@acl.hhs.gov • Rimas Liogys, Director: • Phone: 202-357-3454 • E-mail: rimas.liogys@acl.hhs.gov

  4. Staffing Updates • Aaron Bishop joined AIDD as Deputy Commissioner • Pam O’Brien joined the OPS staff in January • Sara Newell, primary point of contact for all DDC questions • Other staff assigned to work on DDC grants: • Rita Stevens • Carla Thomas • Pam O’Brien

  5. AIDD Staff Contact Information

  6. DD Council Updates

  7. Review of PPRs • We will be sending an email this week asking Councils to verify the numbers they have reported for accuracy • Noticed several instances of duplicate numbers: • #s should be broken down by objective • Do not duplicate #s over different outcomes for a single objective

  8. Review of PPRs • The revised PPR data will go through a data analysis. • Results will be used to develop reports and identify areas for additional T/TA

  9. Update – PPR Revisions • Implemented hybrid report using new PPR template • Still working on performance measures • Individual Advocacy • Systems Change • Funds Leveraged NEW!

  10. Workgroup Members • Council Representatives: • Anna Lobosco, NY • Graham Mulholland, PA • Holly Riddle, NC • Wanda Willis, TN • Vendella Collins, MI • Joanna Cordry, TX • Ed Holen, WA • AIDD Representatives: • Jennifer Johnson • Sara Newell, AIDD Program Specialist • ITACC Representatives: • Sheryl Matney • Hillary Spears

  11. Revised Performance Measures • June – August, 2012: Sought feedback from Councils • September 2012 – February 2013: Worked in sub-groups to focus on making changes to two performance measures (systems change and individual advocacy) based on Council feedback

  12. Revised Performance Measures • January, 2013: Council submit “hybrid” report • March, 2013 – June, 2013: • Full workgroup reviewed changes and provided feedback • Discussed third measure of funds leveraged • Discussed pilot process • Internal meetings with ACL to solicit feedback

  13. Revised Performance Measures • What we need your reactions, ideas, feedback • What do you like about the draft revised performance measures? • What are your concerns with the draft performance measures? • Where do you need more information?

  14. Opportunities to Provide Feedback • Session at TA Institute from 4:30 – 5:30 • Participate in webinar on July 22, 2013 from 3:30 – 4:30 EST • Submit comments/feedback in writing by July 31, 2013 to sara.newell@acl.hhs.gov

  15. Revised Performance Measures • AIDD plans to conduct a pilot of the draft performance measures to determine if the measures: • Are feasible, reliable and valid • Need to be revised to strengthen feasibility, reliability and validity • Identify and develop guidance for collecting the data

  16. Timeline for Pilot

  17. Pilot Group Commitment • Participate in pilot starting October 1, 2013 • Commit staff time to implement changes to data collection, reporting and grants/contracts systems to be able to test out new performance measures • Document process to identify what is working and what is not working

  18. Pilot Group Commitment • Participate in pilot group meetings to: • Provide feedback on what is working/not working • Recommend and review proposed changes • Test out changes • Assist with developing and revising instructions and forms for collecting data • Assist with identifying and developing procedures and systems needed to collect data • Provide peer to peer support and training as requested

  19. Pilot Group Commitment • It is anticipated that the pilot group will meet at least quarterly and as often as needed. The pilot group could meet as frequently as monthly if it is necessary • We anticipate that all meetings will be conducted remotely and that travel will not be required • More information to come in July!

  20. New Cross Program Measure • AIDD is exploring creating “super measures” for the DD Network programs • These measure could replace the program specific GPRA measures in the PPRs

  21. MTARS Streamlining Project • In 2012, OPS engaged in a project to evaluate and revise the MTARS • Phase 1 of the project conducted January – April, 2012 • Waiting for PPR data to assess effectiveness of Tier 1 and to further develop Tier 2

  22. MTARS Streamlining – Phase 1 Goals • Review and evaluate current AIDD MTARS model and materials with a particular focus on examining the relationship of monitoring, outcomes and technical assistance • Review and evaluate other federal monitoring models • Review and evaluate materials that could inform our monitoring process

  23. MTARS Streamlining – Phase 1 Goals • Conduct focus group sessions with key stakeholders • Analyze results and develop recommendations for a revised monitoring system, that will inform Phase 2 of the project

  24. MTARS Streamlining – Phase 1 Findings Strengths of MTARS Weaknesses of MTARS Cumbersome Efficacy in addressing non-compliance/network collaboration Lack of follow up Not systematic Frequency Lack of focus on outcomes Lack of clarity in scope of work Combining TA and monitoring Length of time to produce report • Being On-site • Team Composition • Checklists • Process and Feedback

  25. MTARS Streamlining – Phase 1 Recommendations • Rebrand the MTARS • Utilize a Tiered Review System • Tier one: annual compliance and outcome review of PPRs/Plans • Tier two: periodic in-depth desk audits of compliance and an outcome review conducted by one federal staff person and two peers, similar to the current MTARS team structure. • Tier three: on-site review for red flag programs conducted by federal staff and peers as needed.

  26. MTARS Streamlining – Phase 1 Recommendations • Have the TA Providers Conduct Organizational Reviews as Part of the Monitoring Process • Use Findings as the Foundation for Individual TA and National TA Plans • Have Integrated Compliance and Outcomes Review Tools in a Data Management System • Focus the Report on Information, Ensure Consistency in Format and Improve Publication Timeline

  27. MTARS Streamlining – Phase 2 • Formed a workgroup of grantees, organizational representatives, and AIDD staff to finalize the revised model. • Program teams established (DDC, UCEDD, P&A) to develop a framework and the procedures for Tier 1 and Tier 2 review processes.

  28. MTARS Streamlining – Phase 2 • DDC Workgroup members: • Wanda Willis, TN • Kathy McAllister, FL • Brian Cox, MD • Claire Mantonya, UT

  29. MTARS Streamlining – Phase 2 • Program teams are developing the review tools: • Conducting analyses of the DD Act and program regulation requirements and current PPRs and Plan templates for items related to compliance that can be reviewed on an annual basis. • Identifying items that need to be added to templates.

  30. MTARS Streamlining – Phase 2 • Develop procedures for annual and periodic outcomes reviews • Determining how organizational reviews may be conducted • Develop the criteria for reviewing the programs in Tier 1 and Tier 2, using existing tools as much as possible.

  31. MTARS Streamlining – Phase 2 • Other activities: • Explore having a data management system • Conduct pilots in 2013 • Revise the guidance • Continue to roll-out information to grantees • Conduct training as needed • Determine resources (staffing and funding)

  32. AIDD Discretionary Project Updates

  33. Self-Advocacy Pilot Projects • Funded through contract with Association of University Centers on Disabilities (AUCD). • Goal to support strong and vibrant self-advocacy organizations operating as independently as possible with the ability to successfully obtain their own public and non-public funds to support their infrastructure, operations and activities.

  34. Self-Advocacy Pilot Projects • Funding opportunities competitively awarded to self-advocacy organizations as a means of demonstrating and building capacity to build toward the goal of operating as successful independent organizations.

  35. Self-Advocacy Pilot Projects • Technical assistance to self-advocacy organizations and/or organizational capacity building, for example: • Building multiple revenue sources • Filing documentations for 501c3 status • Collaborating and sharing resources online • Conducting community assessments • Creating and implementing a sustainability plan • Leading a non-profit organization • Building effective partnerships • Effectively using virtual meetings and trainings • Creating tools for data collection and management, • Recruiting and engaging volunteers • Managing public or private grants

  36. Self-Advocacy Pilot Projects • Two types of grants: • Group A: up to five organizations funded at $5,000 each to work toward obtaining 501c3 status • Group B: up to three organizations who already have 501c3 status funded at $30,000 to provide technical assistance to help other self-advocacy groups reach that goal.

  37. Self-Advocacy Pilot Projects • Mini-Grantee Activities to Date •  Self-advocacy organizational development grantees have completed five months of effort on their projects.

  38. Self-Advocacy Pilot Projects • Grant A – Activities to Date • Arkansas People First (APF): Discussions have begun for planning an Arkansas Self-Advocacy Summit. They have researched how to dissolve their old group name STEPS and apply for a 501c3 under the Arkansas People First name. A challenge is noted whereby the president of the APF is having medical issues which have slowed down activities related to the original scope of work.

  39. Self-Advocacy Pilot Projects • Autistic Self-Advocacy Network, Portland OR (ASAN-PDX): ASAN-PDX is near completion of their Form 1023 and has legal counsel assisting pro-bono. They have had preliminary meetings with their advisory board about the structure and content of their informational clearinghouse which will be in the form of a blogging website. A challenge is that the chapter lead has been busy and has not given the clearinghouse project adequate attention; the group met to determine next steps.

  40. Self-Advocacy Pilot Projects • New Mexico Allies for Advocacy: They have begun working towards a 501c3 status. They are holding monthly meetings which included a guest speaker from a 501c3 agency who was brought in to provide advice. They are doing preliminary research on how to create by-laws. They are also planning their first outreach event that will involve numerous group partners. In addition they will present at an elementary school about leadership, inclusion and community involvement. At this point, there are no problems or barriers related to their original scope of work.

  41. Self-Advocacy Pilot Projects • Self-Advocates Unites as 1 (SAU1): SAU1, located in Pennsylvania, is in the process of filing the paperwork for incorporation and tax exempt status. They have written the request for proposal to subcontract for website updating and revision. All activities and goals are in process. Barriers encountered have been health concerns of several key volunteers which have caused a slight delay but they are back on track and progressing.

  42. Self-Advocacy Pilot Projects • Voices of Virginia: Voices of Virginia is currently in the process of selecting leadership and advisors for the organization, and having roles and responsibilities in place. A designated schedule of meetings has been set up during the remainder of the grant period. A database has been created with the member contact information; a Facebook Page has been developed and a blog-style Website has been created. The Peer-Advocacy Coordinator has collaborated with Voices of Virginia to prepare the applications for the 501c3. Barriers are noted in that they still haven’t filled all leadership positions and members are slow to get work done between meetings. In response, they are working to establish a set of protocols for subcommittees to follow in order to achieve objectives in between meetings.

  43. Self-Advocacy Pilot Projects • Grant B Activities to Date • Colorado Cross-Disability Coalition (CCDC): CCDC provided technical assistance to Atlantis, a local self-advocacy group to rewrite theirmission statement and by-laws and both are now completed. Paperwork for State and Federal nonprofit status has been completed for Atlantis. Grant funding for civil rights advocacy work has been secured. Technology upgrades have begun and a strategy and process for recruiting advocates have been developed. A challenge is noted that reviewing Atlantis’s financial records efforts will require more work. The timeline for review of financial records will need to be moved to 12/31/13.

  44. Self-Advocacy Pilot Projects • Peer Action Disability Support (PADS): The project management team met six times. Some significant accomplishments included developing and approving a revised work plan and budget. PADS set the date and location for a self-advocacy summit. They have established ongoing communication with organizations to be supported. The summit preliminary agenda has been developed and created a form to project summit expenses. Several barriers have been encountered with the budget, staff heath and staff participation but PADS reports that they were able to turn them all into successes.

  45. Self-Advocacy Pilot Projects • Self-Advocates Becoming Empowered (SABE): • Meetings via conference call have occurred several times with SABE Representatives and Alternates from states identified in the grant application.  During the meetings, SABE reviewed states’ commitment and responsibilities, and reviewed the key activities of the grant and how they would be divided between the Organizational Committee and the National Self Advocacy Development Committee.  • SABE has begun to gather and utilize existing state and local resources that have been effective for self-advocacy organizational development to provide technical assistance to local and state self-advocacy organizations. • The Resource Review Form, meant to gather information on self-advocacy organizational development was created and tested with resources submitted for this purpose. The Topic Survey was drafted per the scope of work. A barrier encountered with the Resource Review Form was during testing the numeric scoring was problematic. During the Topic Survey evaluation, different team members joined different meetings so they received a more careful evaluation because when it was challenged, the survey gained clarity and accessibility.  • SABE made one change to their scope of work: the group added an additional outcome to the goals which is to have an all user friendly Resource Center for members of self-advocacy organizations to utilize.

  46. Self-Advocacy Pilot Projects • Lessons learned and recommendations • Continued evaluation  • Adding to this small number of currently funded organizations will amplify the effort and will be more likely to have a national impact on self-advocacy organizations desiring increased independence and demonstrate a continued level of support from AIDD to the self-advocacy community. • Selecting an additional cohort for the coming year will also allow for selection of grantees that serve a more diverse range of self-advocacy groups and will allow consideration for additional ethnic and racial groups as well as geographic regions.

  47. PNS Update • AIDD funded a few projects at the end of FY12 • Partnerships in Employment Systems Change: • Vanderbilt University (Nashville, TN) • Governor’s Council on Disabilities and Special Education (Anchorage, AK)

  48. PNS Update (cont.) • Community of Practice for Supporting Competitive Integrated Employment for Individuals with I/DD • The Institute for Community Inclusion (ICI) at the University of Massachusetts Boston

  49. PNS Update (cont.) • Data Collection • Research and Training Center on Residential Services and Community Living, Institute on Community Integration, University of Minnesota • The Coleman Institute, University of Colorado • Institute for Community Inclusion, University of Massachusetts Boston

  50. PNS Update (cont.) • Community of Practice for Supporting Families of Individuals with I/DD • National Association of State Directors of Developmental Disabilities

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