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Butterflies Derbyshire ADHD Support Network

The Road Ahead. Butterflies Derbyshire ADHD Support Network. The Beginning. Conceived as a result of the Derby University ADHD DAFT conference in 2008. After hearing the opinions of parents and professionals there was a consensus that there wasn’t enough information freely available.

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Butterflies Derbyshire ADHD Support Network

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  1. The Road Ahead ButterfliesDerbyshire ADHD Support Network

  2. The Beginning • Conceived as a result of the Derby University ADHD DAFT conference in 2008. • After hearing the opinions of parents and professionals there was a consensus that there wasn’t enough information freely available. • It was recognised that support groups should be able to share their information rather than standing alone.

  3. The Beginning • A group of parents and professionals discussed how they could make more information available and the easiest way to do it • Options included a newsletter, leaflets and a web site • It was decided that a web site would be the best option

  4. Why a web site? • Perfect place to store shared resources where the most people could access them • Professionals, families and carers would have access to the same information • People could report their experiences for people to learn from

  5. Going Live • Web site went live in October 2009 • Contains locations and details of support groups as well as shared documents and articles. • Forum and live chat facilities added during the next few months.

  6. Evolution • Committee hosted scheduled live chat sessions on Thursday evenings • One-to-one help for parents and family members • Media coverage • Suggestions from professionals

  7. What we’ve discovered • Professional involvement is valuable but rare • Everyone who lives with ADHD needs help and support • Carers, especially secondary carers, are often neglected • There is a lot of help out there, but families often have to go and find it themselves

  8. What we’ve discovered • Schools, GPs and social services are often unable to offer aid or advice • Recognition and acceptance of ADHD is still rare in schools • Derby City and Derbyshire are very different in their approach to ADHD • Not enough integration of services (although this is improving)

  9. Current focus • Parent support involvement with RAPID training • Attending multi-disciplinary meetings • Sharing discoveries and information from these meetings with everyone through the website

  10. Current focus • Providing assistance for parents and carers to start up their own support groups • Publicising and signposting support groups • Providing one-to-one support to parents or carers who contact us through the website

  11. The Road Ahead • More help for families • More information on adult ADHD • Information about related and co-morbid conditions, such as ADD, Aspergers and ASD • More involvement from professionals

  12. Thank you Any Questions? Anyone who can help?

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