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A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

AGM, WG1. A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE. Title of the Slide. How can we build and grow EPF? Working with EU presidencies as a standard approach – ex. conferences on patients’ issues

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A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

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  1. AGM, WG1 A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

  2. Title of the Slide How can we build and grow EPF? • Working with EU presidencies as a standard approach – ex. conferences on patients’ issues • Skepticism/criticism about industry funding to be stopped including from within EPF – accept that this funding is important for EPF • Set a European Patient Organisations’ Day • Strengthen EPF relationship with EU institutions to better influence MS • Also strengthen EPF direct relationship with MS governments – ex. of Directive blocked by the Council

  3. Title of the Slide • Funding – explore donations (including in-kind) from individual patients – set up a Trust for this purpose • Set up a ‘competition’ scenarios for raising awareness and networking, ex. Football matches, MEP award, award for best funder

  4. Title of the Slide How can membership reinforce EPF? • EPF to organise actions at national level in cooperation with members • Capacity building programmes – mechanisms for exchange of experience, ex. on project development and applications, media – especially for national POs • Focus on fundraising – EPF support team for members to access funds • No core business of EPF • Place higher focus on new MS POs to reduce the gap, ex. Workshop on health policy system in new MS

  5. Title of the Slide • Organise AGM in different countries for better national outreach – more local POs, media visibility, attracting local government representatives • Structure differently the governing bodies and/or Secretariat to address EPF growth, ex. Allocate specific responsibilities for regions/countries • Monitoring and evaluation of cascade impact of projects’ outcomes and policy work – members to show how they made use of this knowledge, ex. Dissemination – is information getting where it should be? • Consultations with members – prioritise, simplify, better coordinate with other organisations doing same consultations

  6. Title of the Slide • Database of expertise within members • UN Convention on people with disabilities

  7. Title of the Slide Where we want to be by 2020? EPF will not exist anymore because everything will be perfect! Getting from aspiration to reality! Emphasise the richness of the diversity of membership EPF Research Centre established to look into development of POs Get an official recognition/status from EU institutions that EPF is the real true representative of the patient community – but could fire back…..

  8. Title of the Slide MISS and MISTER EPF!

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