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This document explores the role of Learning Disabilities Wales (LDW) as an umbrella body that aims to amplify the voices of individuals with learning disabilities and their families. It highlights the mission and aims of LDW, addressing both external and internal challenges faced by the organization in advocating for rights and services. Through two case studies, Cardiff Supported Living and Disabled Children Matter Wales, the impact of LDW’s initiatives is evaluated. The goal is to promote inclusivity and improve the quality of life for people with learning disabilities in Wales.
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Contents Wales Welsh Assembly Government and the Voluntary Sector- NGO’s All Wales Principles Why Have an Umbrella Body? Role of LDW LDW Mission LDW Aims External Challenges Internal Challenges Features of the LDW Umbrella Building our Profile Case Study 1: Cardiff Supported Living 2007 Case Study 2: Disabled Children Matter Wales 2008- Continuing Are we making a difference?
Wales • Population- 2.9m • Long Term Illness or disability- 23% • Poverty- 1 in 4 in low income • Adults with severe learning disability; 10,800
Welsh Assembly Government & the Voluntary Sector - NGOs • Voluntary Sector Scheme • Voluntary Sector Partnership Council • Compacts between Municipalities and Voluntary Sector
All Wales Principles 1983 • People with learning disabilities have a right to; • An ordinary pattern of life in the community • Be treated as an individual • Additional help and support in achieving their maximum potential
Why Have an Umbrella Body? Role of LDW • Balance voice of government and of parents • Voice for NGOs • Encourage development of NGOs
LDW Mission “Create a Wales that values and includes every child and adult with a learning disability in Wales”
LDW Aims Strengthen the • Voice, rights and status of children and young people • Voice, rights and status of adults • Ability of parents , carers and families to make a positive contribution and • Promote a range of person centred services for children and adults • Set a good example in the way that it is run
External Challenges • The Cinderella • Abuse scandals in hospitals; Ely • Children and young people ‘ineducable’ • Plus • Understanding Welsh social constraints • Collaboration with Govt versus campaigning
Internal Challenges • ‘Cradle to grave remit’ • Picking priorities • Picking issues where we can win • Recruiting and retaining staff
Features of the LDW Umbrella • Governance and election processes • Member consultation • Facilitator and coordinator
Building our profile • Professionally presented materials and events • Membership of National Assembly lobbying representative association; Public Affairs Cymru • Being useful to govt: win/win • Attendance at all political party annual conferences • Using politicians • Developing contacts in the media
Case Study 1: Cardiff Supported Living 2007 • All services re-tendered • Partnership formed • Judicial review • ‘Won battle but lost war’ • Ethical issues
Case Study 2: Disabled Children Matter Wales 2008- Continuing • Poor patchy services • Investment in England • Partnership formed • Political activity • Being ‘sucked in’ • Some achievements