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Millie Jones June 18, 2001 MCHB Webcast

The Reshaping of the Children with Special Health Care Needs Program: Sharing Wisconsin’s Experience. Millie Jones June 18, 2001 MCHB Webcast. Wisconsin CSHCN Program.

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Millie Jones June 18, 2001 MCHB Webcast

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  1. The Reshaping of the Children with Special Health Care Needs Program:Sharing Wisconsin’s Experience Millie Jones June 18, 2001 MCHB Webcast

  2. Wisconsin CSHCN Program Presentation will provide participants overview of experiences related to restructuring from direct payment to infrastructure development program focus: • Background steps leading to recommendation for program restructuring • Description of Regional CSHCN Centers and current status • Lessons learned

  3. Wisconsin CSHCN Definition Estimate that 15 - 17% of population or 240,000 Wisconsin children and young adults have special needs. Child to young adult (0 through 20) with a long term chronic physical, developmental, behavioral, or emotional illness or condition.

  4. Creation of Regional CSHCN Centers Goals: Provide a system of information, referral, and follow-up services  Promote parent-to-parent support  Initiate formal working relationships with local health departments  Increase the capacity of local health departments and other local agencies to provide service coordination  Work to establish a network of community providers of local service coordination

  5. Description of Five RegionalCSHCN Centers Budget: Allocation of $1.37 million based on formula with MCH Advisory input, 20% set aside in Year 1 for local service coordination Location: Each of the Division of Public Health regions Staffing: Executive Director, Parent Consultant(s), Service coordination lead, Information/Referral coordinator (4/5 centers) Agency type: hospital (2), university genetics center/UAP, local health department, family resource center

  6. Preliminary Local Health Department Phone Survey Results: March, 2001 • Contracts: 80% of local health departments (LHD) have a MOU in place with the Regional CSHCN Center. • Outreach: LHDs reported strengthening or building new relationships in their communities (Birth - 3, Human Services ) • Center Services: Overall communication between the LHD and Center was described as responsive, useful, and timely.

  7. Survey Results Continued • Service Coordination: Relationship with Birth-3 (early intervention) and CSHCN service coordination benefit • Parent-to-Parent: 75% of counties have identified a designated parent liaison • Training topics: health benefits, parent leadership, school laws/parent rights

  8. Lessons Learned • Broaden approach to the CSHCN population at the local level has expanded partnerships • Greater awareness of family centered care with active parent involvement • Increased coordination and utilization of local resources • Infrastructure to address the population of CSHCN: Early detection and prevention Universal newborn hearing and screening  Birth defect surveillance

  9. Questions? Wisconsin Contact Information Sharon Fleischfresser M.D., M.P.H., CSHCN Medical Director Phone: (608) 266-3674: e-mail: fleissa@dhfs.state.wi.us Peggy Helm-Quest, M.S.Ed, MHA, CHES CSHCN Unit Supervisor Phone: (608) 267-2945: e-mail: helmqp@dhfs.state.wi.us Susan Uttech, M.S., CHES Family Health Section Chief Phone (608) 267-3561: e-mail: uttecsm@dhfs.state.wi.us

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