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Didier GUILLON & for the GENNERE WG Haijin YU

GENNERE Generic Epidemiological Network in Nephrology & Rheumatology. Didier GUILLON & for the GENNERE WG Haijin YU. GENNERE Project Background. SIMS-REIN : French national epidemiological network in Nephrology (Leader: Dr. Paul Landais) GENNERE

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Didier GUILLON & for the GENNERE WG Haijin YU

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  1. GENNERE Generic Epidemiological Network in Nephrology & Rheumatology Didier GUILLON & for the GENNERE WG Haijin YU EU seminar: China IT week, 27th, April, 2004

  2. GENNERE Project Background • SIMS-REIN: French national epidemiological network in Nephrology (Leader: Dr. Paul Landais) • GENNERE • Chinese needs • Genericity • Medical: easy extension to other fields • Software: reuse and adaptability • Language: Chinese, English, French … EU seminar: China IT week, 27th, April, 2004

  3. Context • Thank to ASIA-ITC EU Commission • 18 months (Feb, 2003 ~ Aug, 2004) • Budget: 400,000 € • Chinese Partner: Rui Jin Hospital, SSMU • Domains: Nephrology, Rheumatology • Today’s focus: Nephrology - ESRD EU seminar: China IT week, 27th, April, 2004

  4. GENNERE: a challenge of public health End Stage Renal Disease ( ESRD ) Cardiac diseases Liver cirrhosis Diabetes mellitus Cerebral vascular accident ESRD — An evolving care demand during the last decade EU seminar: China IT week, 27th, April, 2004

  5. More effective management in ESRD • More accurate monitor system • Describe the population concerned • macroscopic adjustment • More accurate evaluation of disease control • Medical financial administration & budgeteering EU seminar: China IT week, 27th, April, 2004

  6. USRDS Africa America Asia Europe Oceania World-wide demand of epidemiological research in ESRD A continuous & routine work EU seminar: China IT week, 27th, April, 2004

  7. Increasing problems of ESRD in China • High incidence • High cost • High personal burden Patient Hospital Government administrators （Public Health Bureau, Medical Insurance Bureau, etc.） EU seminar: China IT week, 27th, April, 2004

  8. The first step of Chinese renal registry(Shanghai, 1999) • Manual (Totally/partly) • Disadvantages • Statistical bias (overlapping of patients) • Data-delay • Non-dynamic • Retrospective & cross-sectional study 33.3% (pmp) Annual point prevalence(pmp) in Shanghai EU seminar: China IT week, 27th, April, 2004

  9. Medical & paramedical teams Health administrators GENNERE Patients Researchers Conjugated needs EU seminar: China IT week, 27th, April, 2004

  10. A network of Information for GENNERE • Record and transmit epidemiological features • Information & medical knowledge concerning • Care and quality • Epidemiology and research • Planning and management • Training EU seminar: China IT week, 27th, April, 2004

  11. Renal and Epidemiological Information Network • Unity of action: the patient • Unity of location: the region • Unity of exchange: a secured network EU seminar: China IT week, 27th, April, 2004

  12. Unity of action: the patient • Patient-oriented information • Focused on channels of care • A shared common minimal medical file • A unique identifier for ESRD EU seminar: China IT week, 27th, April, 2004

  13. Unity of location: the region The most pertinent level for • Exchanges of proximity • Control of exhaustivity • Quality control • Network management EU seminar: China IT week, 27th, April, 2004

  14. Unity of exchange: a secured information transfer • https, 128 bits encoding • Respect of confidentiality EU seminar: China IT week, 27th, April, 2004

  15. 3-tier architecture universal clients web dynamic server data Web Interface HTML Event database JSP Servlet Identity database EU seminar: China IT week, 27th, April, 2004

  16. Need for agreements • Institutional support • Agreements between partners • User charter • Information charter • Strong synergy with public health units EU seminar: China IT week, 27th, April, 2004

  17. Medical technique support • Multiple language • Unique international code (ICD-10) • Specialized classification (Paul LANDAIS)

  18. Results (1) EU seminar: China IT week, 27th, April, 2004

  19. Results (2)

  20. Results (3) • Features of GENNERE • High efficiency • macroscopic economical control • local administration • Real-time information • Dynamic data • Break the regional restriction of data EU seminar: China IT week, 27th, April, 2004

  21. Next step (2005~2006) • Objective • Epidemiology • Descriptive statistics of ESRD • Aid to public health decision-making • Visual and intuitive graphic interface • How? • Data warehouse • Integration of remote databases EU seminar: China IT week, 27th, April, 2004

  22. Perspective Geographic Information System EU seminar: China IT week, 27th, April, 2004

  23. GENNERE partners Paris - NECKER Grenoble – TIMC IMAG Paul LANDAIS MichelSIMONET DidierGUILLON Grenoble - AGDUC Belgium - RAMIT Michel FORET Philippe GAUDIN Georges de MOOR Shanghai – RUI JIN Nan CHEN Wen ZHANG EU seminar: China IT week, 27th, April, 2004

  24. The end EU seminar: China IT week, 27th, April, 2004

  25. Grenoble Shanghai Contact 联系方式 • Michel SIMONET Michel.Simonet@imag.fr • Didier GUILLON Didier.Guillon@agduc.com • Haijin YU 俞海瑾 Kidney_rj@medmail.com.cn EU seminar: China IT week, 27th, April, 2004

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