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Enhancing Community Support for Childhood Cancer Care: Insights from Prof. Mayur Lakhani

Every year, 1,700 children and 2,100 teenagers are diagnosed with cancer, necessitating centralized treatment across 21 specialized centres. Prof. Mayur Lakhani emphasizes the importance of community care and support to ensure better integration and coordination of services. Families often travel long distances for treatment, highlighting the need for seamless communication and support systems. Key areas of focus include education, emotional and financial assistance, and ongoing clinical support. Initiatives like CLIC Sargent consultation days aim to gather insights and improve outcomes for young patients and their families.

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Enhancing Community Support for Childhood Cancer Care: Insights from Prof. Mayur Lakhani

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Presentation Transcript

  1. Spotlight on community support Prof Mayur Lakhani CBE FRCP FRCGP

  2. Childhood cancer • 1,700 children diagnosed each year, 2,100 teenagers and young adults • Treatment is centralised • 21 childhood cancer centres; 8 for teenagers • Shared care • Communication between care settings? • Families travel considerable distances

  3. Children: clear example of need • Clear example of where good community care & support could make a great impact • NICE Improving Outcomes Guidance • Fragmentation • How can we get better integration and coordination?

  4. What do families need? • CLIC Sargent consultation days • Talking cancer in February • Survivors conference in September • Surveys • young people • siblings • parents/carers

  5. Findings… • Keeping up with education • Financial support & employment • Emotional support • Keeping up with social activities • Practical support • Clinical support in the community

  6. What is good community care & support? • Every Child Matters • Be healthy • Stay safe • Enjoy & achieve • Make a positive contribution • Achieve economic well-being

  7. Emerging ideas • Key worker • One point of contact • Clinical & non-clinical care • Standard assessment & care planning • Planning at defined points • Transitions • Community MDT • Close links with the primary health care team • Palliative care • Survivorship

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