Consumer Health Information Partnerships

1. Consumer Health Information Partnerships Nebraska Library Commission National Network/Libraries of Medicine McGoogan Library of Medicine Univ. of Nebraska Medical Center North Platte, NE Nov. 10, 2005

4. Objectives • The Demand • Providing Health Information Services • Guides for Developing A Community Program • Funding Opportunities • Resource List • Assessment and Evaluation

5. The Hierarchy National Institutes of Health National Library of Medicine National Network/ Libraries of Medicine NNLM -MidContinental Region

6. National Library of Medicine www.nlm.nih.gov

7. Nat’l Network/Libraries of Medicinehttp://www.nnlm.gov/

8. NN/LM – MidContinental Regionhttp://nnlm.gov/mcr/

9. NN/LM – MidContinental Regionhttp://nnlm.gov/mcr/

10. The Growing Demand for Health Information

11. What is Consumer Health Information? • Health information intended for people who are not health professionals. • Consumer health information helps people to understand their health and make health-related decisions. • Includes information about prevention and wellness. • Can be found where ???

12. Did We Remember These? • Pharmacies • Grocery Stores • Health Food Stores • Bookstores • Physician Offices • Libraries • Internet

13. What should I know about consumer health information? • Internet Health Resources: Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access, Pew Internet & American Life Project, July 16, 2003 • Vital Decisions: How Internet users decide what information to trust when they or their loved ones are sick, Pew Internet & American Life Project, May 22, 2002 • Cyberchondriacs Update, Harris Poll #21, May 1, 2002

14. What are some good starting places? • MedlinePlus - http://medlineplus.gov - the National Library of Medicine's consumer health web resource. Includes information on over 600 health topics, full-text drug information, a full-text medical encyclopedia, daily health news, and more. • FamilyDoctor.org - http://www.familydoctor.org - From the American Academy of Family Physicians. Health information for the whole family. • Cancer.gov - http://www.cancer.gov - From the National Cancer Institute. Extensive information about types of cancer, clinical trials, statistics, and more. • Lab Tests Online - www.labtestsonline.org - A site developed by clinical labaratory professionals to help the public understand lab tests that are part of routine care or used in diagnosis and treatment. • NIH Senior Health - http://nihseniorhealth.gov - the National Institutes of Health's web site for seniors and their care givers. • ClinicalTrials.gov - http://clinicaltrials.gov - the National Library of Medicine's searchable database of clinical trials in which consumers may wish to participate. • DIRLINE - http://dirline.nlm.nih.gov/ - the National Library of Medicine's online directory of health organizations. • ToxTown - http://toxtown.nlm.nih.gov/ - the National Library of Medicine's web resource for consumers to understand toxins in their environment.

15. MedlinePlus www.medlineplus.gov/

16. Dirline – The Bookhttp://dirline.nlm.nih.gov/

17. Toxtown http://toxtown.nlm.nih.gov/town/main.html

18. Evaluating Resourceswww.nlm.nih.gov/medlineplus/ evaluatinghealthinformation.html

19. Providing Health Information ServicesResources by public librarians for public librarians • Healthinfoquest - http://nnlm.gov/healthinfoquest/ This online resource provides pathfinders to common consumer health questions encountered in public libraries. • Consumer Health Information for Public Librarians • The Public Librarian's Guide to Providing Consumer Health Information • The MLA Encyclopedic Guide to Searching and Finding Health Information on the Web • The Medical Library Association Consumer Health Reference Service Handbook and CD

20. Providing Health Information ServicesTraining Opportunities • Consumer Health Information Specialization Program - http://www.mlanet.org/education/chc/index.html - through the Medical Library Association. An opportunity to earn certification to become a Consumer Health Information Specialist. • National Network of Libraries of Medicine (NN/LM) - http://nnlm.gov/ - can provide training at no cost. • Medical Library Association (MLA) - Classes, presentations, and training opportunities at MLA's Annual Conference - http://www.mlanet.org/am/index.html, or through their regional chapters - http://www.mlanet.org/chapters/chapters.html.

21. Guides for developing a Community-based Health Information Program • What are community health information programs? • Bring together resources and skills of community organizations to address a health information need • Programs initiated at the community level, will have more buy-in and participation.

22. Your ideas • What do you want to do? • Why? • For whom? • When?

23. Your resources • What’s your expertise? • What resources do you have? • What resources do you need? • Are you reinventing the wheel? Is anyone already doing something like this?

24. When do you need a partner? • Available expertise cannot meet a known need • Available resources cannot support a needed activity/program • Funding agencies require/prefer/suggest it • http://nnlm.gov/libinfo/community/funding.php • http://www.imls.gov/grants/library/ • http://www.gatesfoundation.org/libraries

25. Potential partners for libraries • Local physicians, dentists, and chiropractors, pharmacies • Public health departments • Women, Infants, and Children (WIC) program offices • Counseling centers or mental health clinics, HIV/AIDS resource centers and clinics • YMCA or YWCA, Faith-based groups • Planned Parenthood • Public and private schools • La Leche League groups • Hospice providers, visiting or home healthcare nurses • Senior citizens' homes, day care centers • Fitness centers or health clubs • Health food stores

26. Who makes a good partner? • Criteria for potential partners • Organizational atmosphere • Staying power • History of success • Similarity of interest – common ground

27. Before you begin, do an assessment to… • Understand the partnership • Describe your community and its people • identify the needs of a community to provide services appropriate to those needs • Understand the environment • Identify stakeholders

28. Guides for developing a Community-based Health Information Program • What is the role of public libraries with community partners? • Public libraries are an integral part of their communities. • Help people access needed services and resources. • Enhance information sharing, referral, and collaboration among community agencies. • Provide information that helps people make informed decisions.

29. Guides for developing a Community-based Health Information Program • Where should public libraries start in developing a community health information program? • What do you want your program to accomplish? • How will you measure your success once the program is underway? • What will you need to report back to your funding source for the program, your administration, and to your community as a whole?

30. Measuring the Differencehttp://nnlm.gov/evaluation/guide/ • Stage 1: Conducting a Community Assessment • Stage 2: Developing Goals and Objectives • Stage 3: Planning Activities and Strategies • Stage 4: Planning Evaluation • Stage 5: Gathering Data and Assessing Results • Stage 6: Utilizing and Reporting Results

31. Plan your program • Plan vs just “jump in” • Good planning is the foundation for measuring impact • Create a logic model Plan backwardImplement forward

32. 1. Set the Direction with a Community Assessment • Formal • Demographic data -Public Library Geographic Database Mapping tool (http://www.geolib.org/PLGDB.cfm). • Surveys • Key Informant Interviews • Focus Groups • Community Functions and/or Meetings • Informal • Windshield survey • Walk about • Suggestion Box Try Survey Monkey!

33. Define Stakeholders and Partners • Local physicians, dentists, and chiropractors • Local pharmacies • Visiting nurses • Counseling centers/clinics • Public health departments • Fitness centers or health clubs • Health food stores • Hospice providers • Senior citizens' homes • Day care centers • Faith-based groups • YMCA or YWCA

34. 3. Define Measurable Goals, Outputs, and Outcomes Goals Outputs Outcomes

35. Elements of a logic model • Goals: The purpose of the program • Outcomes: What benefits, changes accrue • Outputs: How much of what must be produced • Activities: What actions must be taken • Resources: What will be needed

36. Goals • Statement of Purpose – why we do what we do and for whom • Goals also help define the scope of what you can accomplish within the proposed period of time of your project • Example • We will have increased the awareness of and access to biomedical information resources for health professionals and the public. • There will be collaboration in the MCR between medical and public librarians in order to more effectively provide consumer health information to the public

37. Outcomes • Outcomes should be • Goal-related • Specific • Measurable • Action oriented • Realistic • Timed

38. Activities and Outputs • Activities • What will you do? • Who will do it? • Outputs • How many did you do? • How many attended? • How many were distributed? • How many times was it used?

39. Resources • What you have • Budget or expected income • Equipment • Collection • Staff • What you need • Operating expenses (e.g., personnel, acquisitions, maintenance, etc.) • Funds for new initiatives or services • Space

40. Logic models are fluid • Review progress • Document program changes • Don’t change horses mid-stream

41. 4. Plan Activities to Reach Project Goals • Bookmarks and brochures. • Children's story time with topics on community health concerns. • Computer/internet training with a health focus. • Conduct classes on wellness. • Enhance library and community web sites with local and national resources regarding breast cancer screening and detection.

42. 4. Plan Activities to Reach Project Goals (some more!) • Educate community workers on health resources available at the local public library. • Exhibit at Local Health Fairs. • Networks of supporters throughout the community leads to action. • Press releases to local papers and radio stations. • Teen night with a speaker on kids health topics.

43. Define How a Program Will Work: The Logic Model Logic Model

44. Logic model template Goal: __________________________________

45. Example Goal: Improve diet and medication compliance of diabetes patients in North Omaha population

47. Sources for more information • W.K. Kellogg Foundation Logic Model Development Guide http://www.wkkf.org/Programming/ResourceOverview.aspx?CID=281&ID=3669 • Institute of Museum and Library Services http://e-services.imls.gov/project_planning • The United Way http://national.unitedway.org/outcomes

48. 6. Define an Evaluation Plan • What data will be collected (when? from what or who? by who?) • How will it be analyzed (by who? how?) • How will it be reported, disseminated and used (for what decisions or purpose?)

49. Funding Opportunities • From NNLM • Exhibit Awards • Health Information For The Public Outreach • Technology Awareness Program Award • Electronic Document Delivery (EDD) • Library/Technology Improvement Awards • From NLM • Other funding sources - ???

50. Librarians can do more than “Shush.”