Community Development Model

1. Community Development in MichiganMarch 4, 2005 EHDI ConferenceYasmina Bouraoui, MPH, EHDI Program Coordinator Lorie Lang, MA, CCC-A and Debby Behringer, RN, MSN

2. Community Development Model • Use National 1-3-6 goals as a framework • Carry-over funds to finance projects • Incorporate EHDI information into a variety of venues for parents and professionals • Multiple community stakeholders as partners • Focus on the families

3. Community Development Model • Utilizing health behavior change model • Applying educational techniques to change behaviors of multiple stake holders to meet overall program goals • Utilizing a variety of venues for information delivery.(MI AAP article, hand outs, brochures, website, committees,educational CD Rom for physicians, other presentations to multiple stakeholders • Developing community advocates as messengers to improve outcomes

4. Community Development Model Continued • Assessment and evaluation of stakeholder needs through survey of physicians, audiologists, hospitals and focus groups with physicians and parents • Emphasize data and facts • Utilize credible and respected sources: medical journals and studies, other physicians and stakeholders • Chapter Champion Component • Evaluate efforts

5. Community Development Activities • Prenatal Awareness –Use of EHDI brochures in prenatal programs and NCHAM videos to providers • Post-natal –Use crib card after screening(English, Spanish and under development- Arabic) • Community awareness and support -Delta Zeta Project - Physician groups, WIC,M/ISS, Public Health clinics • Chapter Champion program- Physician packets and MI AAP EHDI presentation, articles • Culture awareness (Arab Chaldean Council, Native American Tribes, Migrant Clinics) • EHDI County Brochure Resources (Samples)

6. Community Development Activities Continued Materials for: • Parents- brochures, crib cards, parent notebook, Web page • Hospitals and providers-brochures, resource guide, newborn screening video,Web page • Physicians-CD-rom, hearing loss packets, web link, AAP materials,Web page (2005), NCHAM Physician survey • Communities-EHDI County brochures, Audiology and Early Intervention/ Parentconferences

7. EHDI Resources and Literature • Web page www.michigan.gov/ehdi • Information Brochures on the EHDI process, Hands and Voices, Guide-By-Your-Side • Resource guide (English and Spanish) • Crib Cards • Physician Education CD for grand rounds/residency/student trainings (50+ attendees) • Early Intervention/Parent Conference- February 2004 and March 2005 • Audiology conference October 2003 and 2004

8. Parent Support in Michigan Hands & Voices Guide-By-Your-Side

9. Michigan Hands & Voices

10. Michigan Hands & Voices’ Mission Statement • We are an organization dedicated to Non-biased support to families who have children who are deaf or hard of hearing. • We will provide activities and information statewide to parents and professionals that may include outreach events, educational seminars, advocacy, parent-to-parent networking, and newsletters.

11. Michigan Hands & Voices’ Mission Statement • We believe that families will make the best choices for their child if they have access to good information and support. • Our organization represents people who use varying approaches to communication and assistive technology.

12. Our Values • Non-Bias Communication Philosophy • Parent-to-Parent Support • Meaningful Participation • Effective Collaboration • Setting High Standards in Education • Accountability and Responsibility

13. A Balanced Partnership Professionals And Parents

14. Today inMichigan Hands & Voices • Parent to Parent Support • Parent Workshop (March 2005) • Newsletter • Resource Guide • Representation on Committees • Educational Advocacy and Training • Social and informational events

15. What’s New in Michigan • Developing a Web page for parents and interventionists • New Resources and Events-sent through the Hands & Voices listserv • Chat Room • Tutoring for sign language

16. 2929 Covington Court Suite 200 Lansing, MI 48912-4939 517-487-0066TTY/TTD 800-968-7327 TTY/TTD Michigan Director Amy Lester Lestera@michigan.gov www.handsandvoices.org Michigan Hands & Voices is partially funded by an MCHB grant through the Michigan Department Community Health Michigan Hands & Voices

17. “Guide-By-Your-Side” Tag Team Approach to System Enhancement (adapted from WI GBYS)

18. In Michigan • We have • 83 counties • Over 130,000 live births a year • 2/1000 children will be diagnosed with a hearing loss • Average ID is now 2.4 months

19. Michigan Statistics • 100% of Michigan birthing hospitals screening without a legislative mandate • Screening-92% of infants screened,to date • Diagnostics-46% reported outcomes for bilateral and unilateral refers, (2002 data) • Early Intervention-57% of infants enrolled in services as reported by Department of Education (2002, data)

20. The Challenge • Many Early Intervention Providers have had little to no experience working with very young children who were deaf or hard of hearing; MI EHDI is housed in Department of Health; Early Intervention housed in Department of Education

21. The Challenge • Lost to follow up rates are a concern • Difficulty accessing follow up information from stakeholders • Missing link from diagnosis to intervention • Parent desire to meet another parent who has been there

22. The Mission • To develop a community advocate model of service delivery

23. Parent Guides….Goals Goal 1: Provide parents with the opportunity to establish a supportive relationship with an experienced parent of a child who is d/hh soon after they learn of their child’s hearing loss • Parent Guides will contact the family within 24 hours of receiving a referral. • Parent Guides will meet with the family within 10 days to guide and support the family.

24. Goal 2: Provide an understanding of the unique needs of infants who are deaf or hard of hearing. • Parent Guides will help the families that they meet to learn about the unique needs of d/hh children • Providing books and materials that highlight family stories • By highlighting the impact of hearing loss on a child’s access to communication and demonstrating early communication techniques (i.e. Promoting eye contact)

25. Goal 3: Provide unbiased information regarding communication options • Parent Guides • New “Parent Notebook” • Received training in the sharing of communication options, and presentation styles that may indicate bias

26. Goal 4: Link families to resources available locally, regionallyand statewide • Parent Guides have received training • In the art of listening • Assessing and addressing the question behind the comment • To be ready to answer some of the first questions families might have • And to know how to find appropriate resources for families • Confidentiality and HIPAA Issues

27. Goal 5: Ensure that families are linked to their county’s interventionists Established rapport eases the introduction of the family to the Early On® program (EI)

28. Goal 6: Ensure that families are connected to other parent to parent resources • Parent guides are NOT advocates. Parent Guides can connect families with Michigan Hands & Voices for advocacy or on-going parent to parent support

29. Training • Initial Training for Parent Guides • October 8-9 2004 • Founders of Guide-By-Your-Side from Wisconsin provided the training • Ongoing training- Conference calls • Attending Early Intervention/Parent conference- March 2005 • 1st referral January 2005

30. Nuts and Bolts • The process • Audiology/medical referral form • Guide-By-Your-Side Brochure/self referral • Guide handbook/policy manual • Tracking in house

31. MI EHDI Contact Information • Michigan Department of Community Health Division of Family and Community Health -EHDI Program 3423 N. Martin Luther King, Jr. Blvd. Room #203 Lansing, Michigan 48909 • Web www.michigan.gov/ehdi • Yasmina Bouraoui, MPH, Program Coordinator (517) 335-9398 bouraouiy@michigan.gov • Lorie Lang, MA,CCC-A Audiology Consultant (517) 335-9125 langlo@michigan.gov • Amy Lester, BA, Parent Consultant (517) 335-8273 lestera@michigan.gov

32. MI EHDI Contact Information • Anne Jarrett, MA, CCC-A Follow-up Consultant (517)335-8878 jarretta@michigan.gov • Debby Behringer, RN, MSN Community Development Consultant (517) 335-8875 behringerd@michigan.gov • Paul Kramer, BA, Data Analyst Consultant (517) 335-9720 kramerp@michigan.gov • Erin Estrada, BA, Data Maintenance Consultant (517) 335-8916 estradae@michigan.gov • Ebone Thomas, General Office Assistance (517) 335-8955 thomase@michigan.gov

33. Community Development Questions???