1. Measuring progress towards delivery of the target Ken Nicholson, ISD

2. Approach Scottish Government Quest & ISD worked with 2 PDS test sites To inform measures + definitions Wider feedback from you Develop local and national datasets Facilitate information flow mapping Useful feedback from test sites

3. The Population All those newly Diagnosed with Dementia from 1st April 2013 All Ages 1st Year focus on those in the community

4. So…. The data we need to support the target What we can do to help you collect that data

5. To support the target Local IT System (National and Local Data) Patient Based Monthly Board Submissions (Cumulative) Local Patient Tracking ISD Excel Spreadsheet (National and Local Data)

6. To help you Submission File Local Excel Spreadsheet Secure Transfer Data Data Quality Reports National Usage Definitions Data Manual Code Lists Local Usage

7. Now For The Details

8. The Target

9. The Target To deliver expected rates of Dementia diagnosis a minimum of a year’s worth of Post-Diagnostic Support coordinated by And by 2015/16, all people newly diagnosed with Dementia will have a Link Worker including the building of a Person Centred Support Plan

10. The Measures The ongoing HEAT standard Confirm 12 months of PDS Ensure that PDS has started Overview PDS using 5 Pillars model

11. The Data (Informed by Test Sites)

12. Min Nat Rec Nat Rec Local The ongoing HEAT standard Current QOF Methodology

13. Min Nat Rec Nat Rec Local To Inform the HEAT standard & PDS Age Band at Diagnosis Stage of Illness at Diagnosis Legal Status at Diagnosis Identifier (CHI) Dementia Sub-Type Gender Care Home Residence

14. Min Nat Rec Nat Rec Local Ensure that PDS has started Date Referral Received For Diagnosis Date PDS Offered Date Diagnosis Confirmed Outcome of PDS Offer Referral Source Date Allocated Link Worker

15. Min Nat Rec Nat Rec Local Confirm 12 months of PDS PDS in Place at 12 Months Status of PDS at 1 Month Date of 1st Contact With Link Worker Status of PDS at 6 Months Date of End of PDS End of PDS Reason

16. Min Nat Rec Nat Rec Local Overview PDS using 5 Pillars model Planning for future care status Plan for future decision making Under- Standing the illness Peer support status Support Community connections

17. ISD Spreadsheet

18. The Submission

19. Link Worker Collects Data Referral (GP/Other) Meetings with person with dementia Recording data (IT/Excel) Ensure you record all national data Items

20. HB/CHP Collates Data Receive data from Link Workers Check all data is received Sense check data for quality Combine data in NHS board level file

21. ISD Receives Data Submission file uploaded Board files collated Data quality Analysis and reports

22. Data Quality Reporting Rough Aggregate Figures Differences Between Submissions Potential Missing Data

23. Reporting Management Reports To Scottish Government (In Confidence) NHS Board Reports (In Confidence) HEAT Reporting

24. Questions