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From Spoon Theory to Peer Support

From Spoon Theory to Peer Support. Ellie Stewart and Naomi Salisbury. Nobody realizes that some people expend tremendous energy merely to be normal Albert Camus.

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From Spoon Theory to Peer Support

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  1. From Spoon Theory to Peer Support Ellie Stewart and Naomi Salisbury

  2. Nobody realizes that some people expend tremendous energy merely to be normal Albert Camus

  3. I explained that the difference in being sick and being healthy is having to make choices or to consciously think about things when the rest of the world doesn’t have to. The healthy have the luxury of a life without choices, a gift most people take for granted. - Spoon Theory by Christine Miserandino www.butyoudontlooksick.com

  4. Spoon Theory and BPD How does it relate to BPD? elanajohnson.blogspot.com

  5. Spoon Theory and BPD boards.straightdope.com What’s different for BPD?

  6. Spoon Theory and BPD What’s the same for BPD? coyerhanging.info

  7. Spoon Theory and BPD Spoons and Symptoms http://claireneelymd.com/

  8. Giving Spoons • feeling supported by friends   • feeling supported by professionals   • feeling understood   • being heard   • being kind to myself   • doing relaxation  • doing exercise  • feeling appreciated  • sense of belonging  • sense of purpose  • voluntary work 

  9. Taking Spoons • lack of support/understanding    • exhaustion    • dealing with intense emotions on daily basis    • chronic anxiety    • eating three meals a day    • being under pressure   • making decisions   • relationship difficulties   • loneliness, social isolation   • professionals not returning phone calls   • money worries   • insomnia   • chronic pain   • planning the day  

  10. Everyone has Different Experiences • The symptoms • Getting and living with the diagnosis • Treatment • What helps you manage • Where you are in your life • What support you need • Who you are! www.standoutblogger.com

  11. Peer Support • Something we have in common and agree gives us spoons! • In Edinburgh based around an internet group and meets about once a month for coffee and a chat • Space to share experiences and useful information and where people feel understood without having to explain yourself http://elearning.rcplondon.ac.uk/Pages/default.aspx

  12. Don’t people just get together and compare techniques? “Peer Support is not about “joining a club for the mentally ill”. It is not a competition of stories or symptoms or about being rescued or infantilized.” – Peer Support: A Theoretical Perspective

  13. What is Peer Support? “It is about understanding another’s situation empathically through the shared experience of emotional and psychological pain. When people find affiliation with others they feel are “like” them, they feel a connection.” - Peer Support: A Theoretical Perspective “In general, peer support has been defined by the fact that people who have like experiences can better relate and can consequently offer a more authentic empathy and validation.” – Peer Support: What Makes It Unique?

  14. Peer Support in Scotland • Home-Grown Advocacy Organisations • Lots of local and online networks • Scottish Recovery Network • Delivering for Mental Health Peer Support Worker Pilot Scheme • Towards a Mentally Flourishing Scotland

  15. Peer Support in Edinburgh • Wide range of groups including BPD Social Group • Meets at least once a month for coffee and a chat in a central location • Uses an online forum to organise meetings and discuss issues in between • Forum to offer and get support and information

  16. How Does It Work? • On your own terms – come along to meet-ups or post if you want to – no obligations and no pressure • Level of Anonymity – book club sign at meet-up, not talking about the group if you meet outside it, meeting in a busy central café, personal details only shared by mutual agreement • Reciprocal – sometimes people get support or information, sometimes they provide it – everyone recognises everyone has something to bring

  17. The best support I’ve found actually is this group, cos like I say on the first meeting I don’t know what I was looking for, a bunch of I don’t know, loonies, what do a bunch of BPD-ers look like? It was only when I sat there in the cafe thinking I have no idea what I’m looking for… And that was a quite reassuring because everybody’s quite normal…

  18. What’s the Benefit? • Everyone is equal and everyone has something to offer • Don’t have to explain yourself • Get useful information – for example around benefits, health services and advocacy • Feel supported to make changes • Gain confidence from others who have ‘gone before you’ • Gain confidence from helping others who are where you once were

  19. Being part of BPD group has been massively helpful to not feel so alone, and see that there are lovely, bright, intelligent people with similar experiences

  20. What are the Limitations? • Doesn’t replaceprofessional support and treatment • Is not crisis support • Is not for everyone • Need to be in the ‘right place’ – which is different for everyone • Personality clashes can happen • If everyone gets ill at the same time it might fold…

  21. Why Does It Give You Spoons? • lack of support/understanding    • exhaustion    • dealing with intense emotions    • relationship difficulties   • loneliness, social isolation   All take away spoons, BUT can be addressed by peer support

  22. Why Does It Give You Spoons? • feeling supported by friends   • feeling understood   • being heard   • being kind to myself   • feeling appreciated  • sense of belonging  • sense of purpose 

  23. The thing that has been particularly useful is peer support, is actually sitting next to people who appear relatively normal, who aren’t howling at the moon, but who share certain personality traits I guess. They’re funny, witty, charming folk, yet they experience some of the things that I do and it’s that validation which is absolutely colossal, it’s probably the biggest thing in all of this. It’s feeling that I’m not that different to everybody, because I think any mental health problem is very isolating, and having that was great.

  24. Thank You and Any Questions? • Thanks for listening • A huge thank you to all the members of the Edinburgh BPD Social Group • Anything you want to ask?

  25. References Evaluation of the Delivering for Mental Health Peer Support Worker Pilot Scheme – Scottish Government Social Research www.scotland.gov.uk/socialresearch Mead, Shery, Hilton, David and Curtis, Laurie – Peer Support: A Theoretical Perspective http://www.mentalhealthpeers.com/pdfs/peersupport.pdf Mead, Shery and MacNeil, Cheryl - Peer Support: A Systemic Approach www.mentalhealthpeers.com/pdfs/PeerSupportSystemicApproach.pdf Mead, Shery and MacNeil, Cheryl – Peer Support: What Makes It Unique? http://www.mentalhealthpeers.com/pdfs/PeerSupportUnique.pdf Miserandino, Christine – The Spoon Theory http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/

  26. Contact Details Ellie Stewart squeeblegirl@gmail.com Naomi Salisbury – CAPS Advocacy naomi@capsadvocacy.org 0131 538 7177

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