1. Peer support e-seminar E-seminar 8th February 2012 Chair: Clare Beard Programme Lead, NHS Kidney Care

2. During the E-Seminar we will mute all delegate’s lines throughout the presentation. This is an interactive session, please add your comments, and thoughts into the chat box as we go through the presentation. If you would like to ask a question please use the raise hand button (this can be found on the right hand side of the screen below the list of participants). We will un-mute your telephone line if you wish to ask a question. Alternatively, during the discussion session type your question into the chat box on the bottom right of the screen If you are having any technical problems, send a message to the Host via the chat panel or call Eleanor Kent on 07795 505941 Tips for using WebEx

3. Agenda

4. North East Renal Network North East Renal Network – Peer Support Update

5. North East Renal Network Progress to date: Documentation agreed and at printing Display boards for each unit designed All CRB checks have been completed Email address set up for each site Regular contact with patients to keep engaged Meeting with project group pre Christmas and 2nd Feb

6. North East Renal Network Next Steps: All posters delivered to units Peer Supporter work outline to be signed and copy retained with project lead contact Date for service to go live 14th February Communication to all staff via email and meetings Display boards to display in each unit and rotate across each site Date for meeting with CONNECT regarding support around evaluation Monitor and evaluate progression through feedback and questionnaires for both seer supporters and recipients of the services

7. North East Renal Network Next Steps Cont.: Promote project in Trust Magazines, Patient groups Share learning across the network in other specialties Enter abstracts in relevant conferences Set up peer group meeting after 3 months of implementation for feedback and support Support from Clinical Leads for the project three leads to attend BRS

8. Peer Support Update Peer Support E-Seminar Wednesday 8th February 2012 Carol Willis

9. Focus • Recruiting patients and carers to the programme • Publishing supporting information • Raising awareness of the project across the MDTs • Engaging with local volunteer services • Planning training sessions for peer supporters Overall project is on track

10. Recruitment • Targeted recruitment now closed • Royal Wolverhampton • 12 patients/carers • Heart of England • 21 patients/carers  Recruitment Phase Successful

11. Supporting Information • Information leaflet • Published as a hard copy & on web site • KCM • Role description • Peer supporter handbook • Training manual • Handouts • Training activity templates   G G Resources published

12. Raising Awareness • Presentation to renal MDTs • Royal Wolverhampton • Heart of England • University Hospital North Staffs • WMRN board meeting • Network’s patient carer forum • Local KPA newsletters • Feedback progress to lead nurses    G G Active engagement of stakeholders

13. Volunteer Services • Volunteer managers/teams engagement in programme • Registration process commenced • Flexible • Support training sessions G G Very positive response

14. Peer Support Training Sessions • Two initial cohorts booked for March • 10 -12 patients/carers • Further cohort scheduled in April • Development of peer support training materials underway G G G First cohort being held on the 7th & 8th March

15. Update on Next Steps • Finalise peer support training manual • Deliver peer support training • Complete volunteer registration process • Establish a Network matching database • Launch programme • Roll out programme to other units • Set up research project

16. King’s Renal Peer Support Programme in early 2012 Eleri Wood Senior Sister Low Clearance & Transplant Clinics

17. Approaching 200 sessions. Big variety in usage of supporters. Big variety in referral sources. …an under-utlised service? • Some patients don’t want it and can be harmed by it. • Practicalities don’t work for everyone. • Timing is crucial. • Staff attitude is crucial.

18. Two stage local service evaluation planned: Stage One: Analysis of my existing data Straw poll of staff awareness Further details from 8-10 staff Stage Two: Invite ideas and feedback from supporters Ask non-users why they didn’t want peer support

19. Joint work also planned: An audit of all renal units in England, with the aims: • Ascertaining current extent of coverage and who offers what kind of support where. • Sharing learning and what works, tackling challenges and difficulties together. • Identifying where there are barriers and offering support and advice to tackle these. • Building a network on which future work or research can be built

20. Possible questions: • Does your unit have any kind of formal peer support service for patients? • If no, for what reasons? • If yes, what are the aims of the service? • Is support offered by phone, face, or email/online? • Is support offered in groups or one-to-one? • Is support offered as a one-off encounter, a specified number of sessions, or as an ongoing service? • Would you be interested in any of the following?

21. Comments, suggestions, ideas?

22. Peer Support: Sharing learning Peer Support e-Seminar 8th February 2012 Clare Beard Programme Lead, NHS Kidney Care

23. Sharing learning • BRS abstracts • How to guide • E-seminar • NHS Network forum

24. Peer Support: Project Assurance Peer Support e-Seminar 8th February 2012 Clare Beard Programme Lead, NHS Kidney Care

25. Project assurance Exceptions: none reported Risks: none reported Key Learning: NE: communication of service to all staff to enhance implementation to be successful WM: Peer Support to be presented at MDT meetings scheduled at HEFT & RWH this week to increase engagement

26. Next meeting